Faith's Procedure on
“Faith was born deformed. When they noticed she had clubfoot, the local hospital referred her to another hospital. I did not know why they sent us away to another hospital. I thought Faith would end up not having the treatment she needs. Ever sin… Read more
“Faith was born deformed. When they noticed she had clubfoot, the local hospital referred her to another hospital. I did not know why they sent us away to another hospital. I thought Faith would end up not having the treatment she needs. Ever since Faith was a little girl, I have had an opportunity to look after her and give her all the attention she needs. Her mother and I are sisters, so she trusts me to be responsible for Faith. When I came here to CURE when she was little, I was so happy. The physiotherapy team is so kind, very patient with others, and caring. This really encouraged me to look forward for the best for Faith. After a few weeks coming here for help, Faith was healed! It was a new life again! Everyone was so happy. Unfortunately, in 2008, the deformity came back. Faith was unable to go to school and life was difficult for her,” shared Stella, Faith’s Auntie.
“When I finish my education, I want to be a doctor so that I can help and care for other people as I have been cared for at CURE. My life will be better if I have my foot corrected again. I am so thankful that I came here to CURE. My parents will be so happy to see me with a new foot again!” exclaimed Faith. Faith is a student in grade four and she is so passionate about becoming a medical doctor. Your prayers and support will help her to have an opportunity to achieve her dreams!
Faith came in for more physiotherapy yesterday and while she was waiting, came into our office and was distracting me (Storyteller Avanell) again! We asked her how her exams went and she says, "Give me a present because I passed exams!" She has also apparently ruined her playing cards by letting them fall to the bottom of her bag and get ripped! Oops.
Physio Diana says she's doing pretty much the same as last time, and her ankle's really stiff so they need to be more diligent about exercising it or else she has to go back and see Dr. James about it. Hopefully that's a good motivator!
Physio Diana says she's doing pretty much the same as last time, and her ankle's really stiff so they need to be more diligent about exercising it or else she has to go back and see Dr. James about it. Hopefully that's a good motivator! https://youtu.be/oLfso7YCezQ
Here in the Storyteller office at CURE Malawi we're working on a local ad to go out and tell people that neglected clubfoot is treatable! Often, parents bring their children with neglected clubfoot to the hospitals and they are sent away and told there is nothing to do, rather than being referred to CURE, so we're trying an TV/Radio ad campaign to get them in! We needed a quote from a kid who was outgoing, spoke Chichewa and preferably English, and lived nearby... sound like anyone familiar!? Last week after Faith visited the physio on Friday we went to visit her and her dad at their house, and here's a small bite of the interview that just has us laughing every time we watch it! https://youtu.be/Gn6HCOoUeRo
Faith is back and is making a mess of my office! She managed to convince me to give her bubbles and a pack of cards - I said she could take both if she promised to let me work - 30 minutes later I'm showing her where I live on google maps! She's doing really well, her gait has improved since last week at physio. She'll be back on Monday for more physiotherapy since she still needs to work on bending her knee. She also just said, "I won't be your friend again" and walked out off the office because I wrote that she was making a mess! We love her sass!
Faith came in today to show us her AFO! We're so glad she made it to Lilongwe and back safely. She has a long way to go before she'll be walking well, but in the meantime she's making a lot of progress in physio!
The fabulous, spunky, silly, smart Faith is back for a check-up. She was being a bit shy, but finally managed to stick out her tongue for the camera, and she was so happy to see Storyteller Avanell! We asked her if she was having her cast off, and she said "U-huh!" She'll be going to 500 Miles in Lilongwe on Wednesday to get an AFO (ankle-foot-orthotic) to help keep her foot in place while she grows. Please be praying for her as it's a long trip up to Lilongwe!
Faith has been so talkative today, maybe it's the feeling of excitement due to the fact that she is going home today. She had her leg propped up on the table where food was placed, oh no! We will miss her in the ward, please keep Faith in your prayers as she goes home!
Faith is so energetic and has a big appetite today. Yesterday she spent most of her time in the theatre and didn't eat. She had been crying and complaining of pain after the surgery, but today she is feeling good. She asked her aunt, Stella, for some muffins and Stella brought her some. Faith says she enjoys cakes of all kinds. If all goes well with physiotherapy, Faith will be going home tomorrow. Thank you so much for praying for her!
Faith sat patiently on her bed today with her mother waiting for our doctors to see her. She is feeling well despite being nervous. Tomorrow she will be going to the theatre for a tendon transfer on her leg. Please pray for our girl as she is going through this process again, we hope it will be her last and we pray that she heals quickly!
Today is a good day to take pictures of Faith! Her cast has been changed, so now it looks smart and clean. Faith has temporarily gone home and will be back at the hospital on Sunday. Doctors have said that they will remove the cast and do a tendon transfer on her leg next week. Please keep Faith in your prayers!
"Please don't take a picture of me, I don't want to see it," Faith said. "Why, Faith?" we asked her. "My cast is so dirty and will damage my cuteness!" and that's Faith, just being a model as always. The curtain did a good job of covering half of her face and saving her from the "embarrassment." Faith came in today and she is doing well and she says there hasn't been any pain in her leg since she left. Doctors will assess her this coming Friday. We thank God for the amazing healing that is being done in Faith and thank you for praying for her!
Our lovely Faith went home yesterday! CUREkids Coordinator Avanell was away for the day and is so sad she missed saying goodbye! Fortunately, Thandy sent her off with encouragement from you, reading her all the get-wells messages you gave her! She knows you are all praying for her! We've been saving this video we had of her for a rainy day, so here's Faith singing "You Are Faithful" We are so grateful that God is faithful in the lives of children like Faith, through our hospital and people like you who provide prayer and support! We're going to miss her, but we'll see her again October 4th for a checkup! https://youtu.be/y5oXLKBUCVQ
"I am so happy to get going home tomorrow! I have been waiting for this moment for ages!" exclaimed Faith. Faith is a superhero today, she is wishing her friends who are still in the hospital a 'quick healing and all the best'. "I have leant so many things being here at CURE. Some of them is praying. Funny, our Playroom teacher, has been so loving and kind to play, teach, encourage and praying for us. I know I will miss CURE so much, but it is good that I have to go home," said Faith. Faith has grown in so many ways, she tells us the five things that she will always remember. 1. Read your Bible, 2. Pray, 3. Testify, 4. Repent to God, and 5. Go to church! Thank you all for your prayers and support. Our girl Faith will always be on our hearts!
Today's the day! Faith is having her frame off later today and we're so excited that this is the last photo of her with a frame! Last night we asked her, "Are you excited?!" "Yes!" "Yes?" "No." "No???" "Yes!" It was a very confusing conversation, but we get the sense that she is quite excited and was just messing with us.
Faith is back to being Avanell's friend - she told us Friday that she'd miss me! And there's even more good news - she's FINALLY GETTING HER FRAME OFF! We're so excited for her, after over two months in the hospital! She had her blood taken this morning to make sure they're all set for surgery - she was complaining because apparently she got pricked four times before they finally managed to find a spot to draw blood from - we would complain too! She's a real trooper and we're so proud of her!
"If you won't let me use the camera, I won't be your friend anymore."
Unfortunately after a long and great friendship, Faith has disowned me, Avanell, as a friend. I would be sad, except that I know she'll forget that we're not friends within the next 30 minutes and start talking to me again!
Unfortunately after a long and great friendship, Faith has disowned me, Avanell, as a friend. I would be sad, except that I know she'll forget that we're not friends within the next 30 minutes and start talking to me again!
Faith made up a song about me yesterday evening - which she didn't want me to record, I think? I'm getting mixed messages... I'm either a bad girl, a good girl, or a winner. As you can tell, despite her amazing English, she also still needs to work on her pronouns! Dr. Christy got on her case the other day for not doing her homework two days in a row, so now she's in trouble! https://youtu.be/VmGQJviYTaI
Faith was trying to hide from the camera, but we got her in the split second she peeked out from under the physiotherapy pillow! She's already come into our office a couple of times today - she's really interested in the surgery photos, which makes sense since she wants to be a doctor! We showed her the photo of her own operation, as well as her friend Elinat's, yesterday. Today we were working on a video update about Mary's tenetomy and she came in to watch it. Don't worry, we didn't show her anything with a lot of blood, tenetomy's are fairly boring!
Faith is feeling a lot better today! Not only is she over being sick, but she had a ton of visitors today! Her mom and little brother Samuel visited, and her friend Lufina came for a checkup in clinic and was hanging around the ward with her. She has been so blessed by the encouragement of her friends here and by all of you!
Faith isn't feeling too well today, so here's a photo of her from Friday when we delivered her get-well messages! She loved hearing from everyone and was trying to memorize Jeremiah 29:11, which someone sent to her for encouragement. Please be praying that she feels better soon.
Yesterday we found Chisomo, a former patient turned volunteer, in the playroom with Faith. Chisomo interviewed Faith for us and we wish we had brought all our interview equipment for it because there was some great banter! https://youtu.be/4VFiir1zC3o
Our lovely Faith sang us two songs today - one in Chichewa, one in English! She said she wouldn't translate the Chichewa song and that I had to learn it, but relented after I turned the camera off. Apparently translated it's talking about giving God the heavy things in our lives. https://youtu.be/IGYTQfbdshE
Dr. Christy is great with the kids! When she came to Faith's bed for ward rounds she looked at her frame, but immediately asked for Faith's homework and helped correct it for her! She's always encouraging Faith to continue working hard on school even while she's stuck in the hospital!
I spy with my little eye - Faith! We tried to sneak up on her but were spotted. Not much news, just continuing the turns for her frame! Dr. James was back and Faith needs to get back to being her comfortable snarky self with him, she seemed a bit shy this morning!
We brought Faith her get-well messages and couldn't decide which photo of her to upload so we went with three! The first one is Faith listening to her message. In the second, Manuel, another CUREkid, came over to listen and was joking and being disruptive so Thandy hit him with a pillow and he started running away and laughing - which was even more disruptive! In the third, Bessie came over to do the turns for her frame while Faith was writing down Isaiah 41:10, which one of her messages encouraged her to read. She says she'll read it later and give us feedback!
Faith is back to herself again today! Already today she has shared some chips with us (sour cream and onion flavored), beaten her friend at a game of Bao, and convinced us to let her borrow the camera to take some photos!
Faith's operation yesterday seems to have gone well, but she's in a lot of pain today and isn't her usual spunky self. Please be praying for her as she heals from the osteotomy and starts turns again today or tomorrow!
Dr. Karolina and Dr. Lubega decided that Faith needs another operation - it seems that the bone they cut so that the frame will move the foot into the right position has healed together, so they need to make another cut to the bone and rearrange the frame a tad so that it will continue to work. Please pray for her as she goes to theater tomorrow!
Faith was having a LOT of fun in the playroom - she was feeding Dora the Explorer with a bottle and wearing some pretty awesome purple shades! She also had another visitor today - her big sister Violet, and was having a lot of fun with her earlier!
A nice gentleman came to visit Faith today - it was her dad! She seemed happy to see him so we asked if she was excited and she got a bit shy on us although she was grinning really big! It's so encouraging to get visits from family!
We brought Faith her get-well messages last Friday before going home for the weekend! She really enjoyed hearing from all her well-wishers and she says, "Thank you for your message, how are you doing? Today it's a beautiful morning with sunshine and a nice breeze. Please continue praying for me."
Yesterday we had several old clubfoot patients come in for a frame research study to see the long term prognosis for frame cases! Mphatso first came in November 2015 and she came back and it's amazing to see how far she's come. Like Faith, she had a left clubfoot and had a frame to bring it into position!.She and Faith were chatting yesterday afternoon and we're sure it was encouraging to Faith to see Mphatso's corrected foot!
Faith has finally figured out how to say the name "Avanell" without tripping up - she's calling me by my real name more than she calls me "Chimzy", her nickname for me, now! I asked her to tell me a story and she ended up telling me a story about me! https://youtu.be/2xaU6_BagD0
We took this video when we brought Faith her get-well messages last Friday and tried to get her to answer some questions for you all. Some she understood better than others, her English is very good but not perfect, but she's getting a lot of practice in the hospital! We weren't able to get a chance to upload it with our poor internet until today! https://youtu.be/_TvK5kWnzJc
Faith is doing some studying today... Well, we asked her about the books on her bed and what she was learning and she opened it up to show us. She was learning about words for weather in her English book!
We brought Faith her get-well messages today! She enjoyed hearing from you, although she didn't want to struggle through English to read them herself and asked Thandy to read them for her. We told her it would be good practice, but she remained unswayed! She was thankful for the prayers and well-wishes though, and she told us to tell you that she did NOT enjoy physiotherapy!
Faith had a strut change today in the operating room - we couldn't find her anywhere and she wasn't in her bed so we were afraid she had gone home or something, until we found her in the recovery bay making faces at us! Of all the photos we took of her, she liked this one best - we preferred the photo of her smiling and sticking out her tongue!
This saucy girl was shouting at us through our office door - and when we opened it, Faith came in and said she wouldn't leave until we gave her bubbles! We managed to get her out with some tickling though! We would have loved to give her bubbles, but we knew there might be issues if we gave her some and not to the rest of the kids in the ward too!
A mission group from the States came in today to entertain the kids and learn about CURE Malawi. They led some songs in chapel for the kids and did some pretty funny Bible skits! Faith was singing along like an old pro!
Here's Faith's new hairdo! She was playing in the playroom with Naomi, a young woman from the Netherlands who has come to volunteer with the spiritual department. Naomi was helping her with a game that helps kids learn spelling!
Guess who had a haircut today! Well, it wasn't CUREkids Coordinator Avanell, so she gets the last laugh! Faith does NOT look happy to be on the receiving end of a haircut - or maybe she's just unhappy that I'm gloating that my hair is still long. It's been in braids a long time so now she's having a change of hairstyle. We brought her get-well messages and she says she's doing well today and is starting physiotherapy. She really wants to go home and get back to school because misses her friends - please be praying for her homesickness! She says "Zikomo" or "Thank-you" for the get-well messages!
Faith said no photos today - she just got out of the operating room and is feeling a bit bleh - so we are honoring her wishes and instead featuring this rowdy crew of boys on her status, which probably isn't what she had in mind! Fortunately, she seems to be doing alright and we had a long conversation and she asked me if the medical director is related to me! I told her whoever told her that was wrong - he's from the UK and I'm from the US!
Faith has finally decided to start using CUREkids Coordinator Avanell's real name - although she insists that her name is still "Chimzy", when she wants to get her attention she'll yell both! The doctors are continuing with the turns, but she'll be going to the operating room tomorrow to have a couple of the struts adjusted a little bit, please be praying for her!
We delivered get-well messages to Faith for the first time ever today and she enjoyed READING them! The frame is really slow, so Dr. James asked her this morning if it hurt, and if she wanted to go faster. She said that she wants them to speed it up! She's a bit homesick, but she says she'll manage until the end of treatment!
Faith came to our office last evening and apparently my hair is too long - here is a bit of our conversation! Also, she wants to be a brain surgeon.... but I don't think I want to trust her near my head - she might be a good surgeon someday, but I'm sure I'd wake up missing some hair! https://youtu.be/AZi8Ya4RyfM
"Bleh!" Dr. James seems pretty confident in Faith's skills, so he's having the nurses teach her the turns and cleaning so maybe she can go home and go to school while she has her frame on! He says that there's a possibility that she can go home on Friday. She's currently in our office and has taken my phone, so I need to retrieve it before there's a million selfies on it!
We went to Lilongwe early Friday morning and Monday was a holiday, so we haven't seen Faith for a LONG time! First thing she said (after yelling 'Chimzy!') was that she missed us - so sweet! Bessie was doing the turns for her frame and it seems to be going really well!
"Bleh!" Faith speaks really good English compared to most of the kids, but the thing we hear her say most is "bleh!" and "Chimzy!" Another CUREkid, Shakira, left yesterday, much to my sorrow, and Faith keeps asking why I'm sad she left - "Because I miss her!" "Oh." I guess Faith doesn't miss Shakira's antics quite as much!
Faith has made some friends and she keeps calling over "Chimzy" to have her photo taken! Shakira and Faith are already great friends, and Eleneta came over to join in the photo - you can see Shakira is trying hard to make sure her face is still in the picture!
"Chimzy! Mehhh!" Faith has taken to sticking out her tongue and saying "meh" to CUREkids Coordinator Avanell. We asked her what it meant, and she just laughed, so apparently it doesn't mean much! Dr. James said that turns for her frame will start today and she's going to be in the hospital for about a month, so she should find something to do! "Do you have any schoolwork you can work on?" Like a typical kid she said, "yes" in a rather begrudging tone which makes us think she was probably looking forward to a break from school!
Faith seems a bit happier this morning! She kept yelling "Chimzy" to me, asking to have her photo taken! And she's back to posing, obviously! She has a bit of pain and swelling in her foot because of the operation, so Dr. James told her to elevate it more. Please keep her in your prayers this weekend.
Faith was NOT happy this morning when we brought her get-well messages. She rested well last night, but this morning has a bit of a tummy ache and some bruises near her frame hurt. The messages encouraged her a little, but please be praying she feels better!
Faith's operation yesterday went well and she's already up and smiling and giving CUREkids Coordinator Avanell the nickname "Chimzy" - short for Chimwemwe, which means joy. Apparently, Avanell is harder to say than 'Chimwemwe' but we're sure our English readers might disagree! Dr. James did a soft tissue release to the tight tendons in her foot and then put a frame around her foot with wires through it. It will slowly separate the bones so they don't grind together and then will move them around into the correct position. She'll have the frame on for about a month and it can sometimes be painful so please be praying for her!
Faith's waiting to go in for her operation with her new friend Ndaziona! Since Faith is a big girl and the children need to fast before their operations, the littler kids go first since they aren't as good at having empty tummies. This means she'll have her operation in the afternoon, please be praying it goes well!
Meet Faith! She's our hospital's new model and she's rockin' the moves! She speaks pretty good English and has been translating a bit for CUREkids Coordinator Avanell for the other kid's already - and asking to have her photo taken! She has clubfoot on one foot which will be fixed with a frame. Because she's older, we can't make her foot perfect, so Dr. James explained to her this morning that although they can make it flat and a lot easier to walk on, it won't be as good as her other foot and she'll notice the difference more than kids who have it bilaterally. Faith doesn't seem worried about that though, she's just glad to have two flat feet. Please pray as she'll have her operation tomorrow or Thursday!
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