Mbuti's Procedure on
In Mbuti’s family, the boys have drawn the short straw. Out of 3 kids, the first (Mbuti) and last born both have what’s called brittle bone disease. Their sister, the second born, was born normal, and even though she’s younger than Mbuti, she… Read more
In Mbuti’s family, the boys have drawn the short straw. Out of 3 kids, the first (Mbuti) and last born both have what’s called brittle bone disease. Their sister, the second born, was born normal, and even though she’s younger than Mbuti, she’s ahead of him educationally and developmentally. At first, nothing seemed to be wrong, but when Mbuti was about 4 years old, his parents noticed his weak bones. “He was breaking them all the time,” his father Daniel told me. In fact, because of how frequently his bones were breaking, Mbuti was in the hospital more than he was in school, which is how his sister ended up passing him.
Gradually, between his fourth and tenth year, the bones in his right leg began to bend. Then the problem transferred to his left leg, and by April 2008, he went through his first surgery, where the doctors inserted a rod through the middle of his bone. It helped, but it was only a matter of time before the problem reappeared in his right leg again. Because Mbuti is still growing, the rods can only do so much to stop his bones from bending. So now he will be coming back to CURE in May to undergo another procedure that will continue the efforts to stabilize him enough to walk on his own.
I’m guessing that most people would get incredibly frustrated if they had legs like Mbuti’s. But Mbuti is not most people. Despite his stubborn legs, he’s maintained such a positive attitude. Currently studying in a special school for disabled kids, he was quick to stop his father from enrolling his younger brother in the same school. “He wishes his brother the best,” Daniel said, “and he has been encouraging us to help his younger brother live a life as normal as possible by not enrolling him in the same school.” So as Mbuti prays that his brother’s problems can be stopped sooner, he himself prays to walk without crutches, hoping his parents will move him out of a special school and into one where he can be seen as “normal.”
It’s been a long time since we updated this cool guy, we're sorry we missed some of the action in his life! We met Mbuti today at mobile clinic. So much has happened in his life, he is now all grown up and in high school. It was a delight catching up with him! He was in the company of his brother Mumo, who also has the same condition, and both their parents were with them. Mbuti had come for a review as his legs have had some complications of late and the doctors recommended surgery. We will be expecting him back at CURE soon, most likely when they have a break from school for holidays. Please be praying for Mbuti!
Mbuti during follow up at his school in Thika during a mobile clinic. With his condition comes constant bowing is almost inevitable. He might still need additional surgery but only if he does his physiotherapy and moves from wheelchair to crutches. We will see him again and asses his progress in July.
Mbuti's follow up appointment has been scheduled for 11/21/2013 - Mbuti is leaving us today! We will see him next month for a check up!!
Mbuti arrived unexpectedly today. He came in with a fracture to his right femur. Doctors have set the fracture! Here are some pictures of the new scars he will be sporting around now !! Unfortunately this is all to common with brittle bone disease, please continue to pray for Mbuti! http://bit.ly/VT1lrX
He decided to show up before October, Dr. Theuri reviewed him post - operation and there are no concerns so far. He is still ambulating on two crutches, so the plan is to help him get to using only one. Otherwise we see him again next year in his school. http://bit.ly/PpNm7U
Mbuti's follow up appointment has been scheduled for 02/26/2013
Mbuti's follow up appointment has been scheduled for 10/04/2012 - He has missed quiet a couple of appointments but I am optimistic that he will show up in October.
Mbuti's follow up appointment has been scheduled for 07/18/2012 - Mbuti is being discharged today! We will see him again for a review in July! Be praying for his healing process as he goes home!
Mbuti has arrived at CURE Kenya - Mbuti is here ! He is first up in the OR, so be praying for our little guy !! Updates and pictures of surgery to come!
Mbuti is receiving treatment at CURE Kenya
Mbuti's surgery was one for the record books! Doctors cut out his femur then proceded to cut it into five or so pieces. They then realigned the pieces along a rushrod making his once bent femur instantly straight! more updates to come! he is now getting casted up and resting in recovery! http://bit.ly/MSZ8rW
Mbuti is in recovery at CURE Kenya
Congratulations! Mbuti's funding goal is met!
Mbuti's treatment date has been changed to 05/27/2012 - Finally, an update on this guy. He had malaria so his dad decided to let him recover from that before getting him booked for another date. We will now see him in about a weeks time.
Just two more weeks...
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