Ukasha's Procedure on
Early this year Sarah joyfully discovered that she was pregnant! However, her joy was short lived as she went for her first doctor's visit and was told they found her baby has hydrocephalus, a dangerous condition where the baby's brain is unable to… Read more
Early this year Sarah joyfully discovered that she was pregnant! However, her joy was short lived as she went for her first doctor's visit and was told they found her baby has hydrocephalus, a dangerous condition where the baby's brain is unable to drain excess fluid causing the head to swell and, if untreated, brain damage and even death. The tech who did the ultrasound advised Sarah she should have an abortion because the baby she was carrying was going to be a problem to her when she gave birth. “When that man told me this I got very angry with him. How could he tell me to abort my child. My husband was disappointed too and told us to leave”. Sarah says that in the days that followed she became very sad and depressed. Her husband Farouk decided to take her to his parents’ home for his mother to comfort her. Sarah was indeed comforted and her mother-in-law also tried giving Sarah some herbal medicines with the hope that they would reduce the baby’s head but unfortunately when Sarah went for her second ultrasound scan, the child's head had instead increased more in size. “I then accepted my child’s condition and started to pray for him”, Sarah adds. On the expected date of delivery, she had a C-Section and says that when she saw her baby, she felt so much love for him. Baby Ukasha is Sarah and Farouk’s first born and immediately after his birth, he was referred to CURE Uganda for surgery. Farouk couldn’t travel with Sarah to CURE because he has to work and earn money to support his growing family. Sarah complements his earnings as a small farmer; she has a few chickens, three goats which her sister is helping to keep while she is at CURE with baby Ukasha. Sarah says that Ukasha feeds well and behaves like any other baby except for his increasing head size but adds that she has hope because she knows he will be treated!
“The size of Ukasha's head has started to reduce. He even feels lighter when I carry him! I thank God”, Sarah said. Doctor Peter let Sarah know that Ukasha is stable and will be discharged today. Sarah was excited to get this good news and has started to prepare for her journey back home!
Look at Ukasha! He is smiling! He had a calm and stable night in ICU and by 10:00 AM he was already transferred back to the general ward. Sarah told us that being in ICU was a little bit scary because of the sounds from the monitors and all the wires on her baby and she is grateful to be back in the ward. Please continue to keep Ukasha and Sarah in your prayers.
This morning, Ukasha was the first baby at CURE Uganda to head into the operating room! Dr. Emmanuel Wegoye performed an ETV/CPC, a procedure that creates an opening in the brain to allow the fluid trapped in there to drain out. The CPC part of the procedure then helps slow down the production of new fluid. Together, these two procedures have a good chance of taking care of Ukasha's hydrocephalus! Ukasha will spend tonight being monitored in the ICU with his mom and will hopefully be discharged to the ward tomorrow! Please be praying for him.
As the procedure is, Ukasha has already had his brain CT scan, his cerebrospinal fluid (CSF) was tapped over the weekend to be analyzed this week, and he has also had blood work done in the labs in preparation for his surgery. Sarah is still in some pain from her C-Section but is relieved that her baby is going to have his life changing surgery at CURE Uganda as soon as his CSF and blood tests come back. Please be praying for Ukasha and his mother Sarah!
Send a Message to Ukasha
We'll deliver your message to Ukasha as soon as we see him.