Benjamin's Procedure on
"I'm God's child, and I know it is God who is working it out!" Juliet has had a long journey on the path to arriving at CURE Uganda with her young son, Benjamin. Juliet and her family are farmers, and live in a very remote village. Benjamin is thei… Read more
"I'm God's child, and I know it is God who is working it out!" Juliet has had a long journey on the path to arriving at CURE Uganda with her young son, Benjamin. Juliet and her family are farmers, and live in a very remote village. Benjamin is their seventh child, and as a young baby, he was and starting to do all the things babies learn to do — he was crawling and developing normally. However, at five months old, he started to deteriorate. By the time baby Benjamin was eleven months old, he was plagued with fever and a seizure disorder, and he could no longer sit up let alone stand or even dream of walking.
Juliet went to many different places in search of help for Benjamin, but her family is very poor and she could often not even afford the bus fare. When she returned to her village to ask for help in getting Benjamin the medical help he so desperately needed, the village thought the child would die, and refused to help. Can you imagine being so poor, and having your community turn against you when you badly need help? It is devastating, but Juliet is a woman who has strong faith in God!
Juliet did not give up - she kept praying and praying, and fasting. She cried out to God to provide for her and for Benjamin. Just this week, she visited a medical clinic put on with a CURE partner, where Stuart, one of our CURE clinical officers, was working. They were able to diagnose baby Benjamin with hydrocephalus and send him and Juliet to CURE! What a strong mother. What strong faith! Juliet is so happy to be at CURE, and we are so happy that God heard and answered her prayers.
Benjamin is three days post ETV/CPC procedure and as of this morning he is doing well. His fever is now down, and he is on oral antibiotics. He has been discharged and will continue the antibiotics from home. However, before they left for home, Dr. Peter advised that they do some physical therapy and also get instructions from the physical therapist on what exercises will help Joseph. We'l see him again when he checks in with us at one of our mobile clinics near his home!
Benjamin had his surgery today! Visiting neurosurgeon Dr. Duy, from Vietnam, performed an ETV/CPC procedure, which means he created a small hole in Benjamin's brain to help his cerebrospinal fluid (CSF) flow better, and then blocked part of his brain that is creating a bit too much fluid. We're hoping and praying that this helps Benjamin's fluids balance out. Benjamin had a bit of a tough recovery, and had some seizures after the surgery, but our anesthesia team was right there to take care of him and give him some anti-seizure medication. He's recovering now in the ICU with mama Juliet staying right next door. Thank you for praying for them both as he recovers - we know that God loves and sees them!
Yesterday the doctors took a CT scan of little Benjamin's brain, and the lab tested his blood as well. This will help give our doctors and surgeons the information they need to make the best plan of care for him. He and his mama are staying in our overflow patient hostel, which actually was just renovated! While mama Juliet did laundry this morning, Benjamin was hanging out, and seemed pretty content to wait and see what the doctors decide!
Benjamin and mama Juliet are getting settled in at CURE Uganda! Nurse Amelia helped welcome them, and then they attended ward worship together with the other moms and babies. Juliet and Benjamin both enjoyed the music! Because the hospital is so full, tonight they'll stay in our overflow patient housing, where there's also a nurse assigned to keep an eye on everyone. We're so glad they're here and looking forward to getting to know them more!
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