Blessing (Margret)'s Procedure on
Blessing (Margret)'s Story
“I thought the child would die immediately the first day, I can’t believe the child has been alive all this time,” said Margret about her daughter's condition. She was born with a left frontal encephalocele. Margaret went into labor before sh… Read more
“I thought the child would die immediately the first day, I can’t believe the child has been alive all this time,” said Margret about her daughter's condition. She was born with a left frontal encephalocele. Margaret went into labor before she could get to a hospital so a local health worker helped with the delivery. When she saw the birth defect, she ran out of the house, soon people hearing the commotion arrived at Margret’s home and told her to take the child to Mulago, the National Referral Hospital. They spent one month and two weeks there where she was given syrups and injections but Margret is unsure what they did for her daughter. They eventually referred them to CURE. Upon arriving at CURE, Margret’s baby was still unnamed. On her medical files, the baby has been named after her mother, but she is thinking of calling her Blessing. Margret has been praying for her daughter, “that God heals the child and for her to serve Him.”
“She is a bright girl, she looks bright.” said Margret. Blessing was discharged today and we will see them in two weeks when they are scheduled to come back to Mbale for their ENT review and neurosurgical review. Last night Blessing cried the whole night but seemed calm in the morning until she got a bath which she didn’t enjoy. Before going, there were a group of mothers around Margret and Blessing saying goodbye. Please continue to pray for Blessing that she will need no further operations.
“Everything is going well,” said Margret. This morning they were moved out of the ICU and into the ward which made Margret very happy. The swelling on Blessing’s head is decreasing and she is a little playful. Please continue to pray for them, that they will have a swift recovery and soon be able to go home.
“Again Blessing wants your prayers,” said Margret. Today Blessing went into surgery where our doctors performed an endoscopic fenestration of membranes and VPS revision. This procedure should reduce the swelling on the top of her head. Please keep Blessing in your prayers, that she will recover well.
“The weekend was good because when you are at CURE everything goes well. Blessing is okay, waiting for surgery the day (is) unknown,” said Margret. Please keep Blessing in your prayers that her upcoming operation will go well.
“Today she is okay, no other problems only this,” [signaling to Blessing’s head] said Margret. Her doctors are still reviewing her scan, one possible theory is that the shunt is working but there are chambers of fluid that are not connected so they would need to go back in with an endoscope and connect the chambers to have even drainage. Margaret and Blessing are both doing well, Margaret seems happy and so does Blessing. Please keep Blessing in your prayers, that if she needs another operation it will go well.
“Do you see this forehead? Every day it grows,” said Margret. Blessing and Margret had a good night they both slept well. Blessing is feeding well but running a fever at about 100 degrees. They are running another scan today and going to make a plan for Blessing. Please keep them in your prayers, that they will be comforted regardless of the results of the scan.
Blessing saw the ENT doctor today. He is still unsure of the progress so she will return next month. However, she will not spend the night at CURE, instead they will sleep at Mbale Main Hospital. Margret says, traveling is becoming hard on them as it costs about seven dollars to travel from their home which is a few hours away to the hospital. Blessing has been examined by our doctors because Margret is reporting her head increasing in size. They have performed a CT scan and are reviewing it and making a plan. Please keep Blessing and Margaret in your prayers.
Blessing and Margret have returned to the hospital and spent last night in the hostel. Today, they have traveled to Mbale Regional Referral Hospital to see the ENT doctor. They will come back again next week to see the ENT one last time. Blessing is improving and Margret is happy. Please keep Blessing in your prayers, that she will continue to improve and for safe travel as they commute between home and the hospitals.
“God has done the great work,” said Margret about Blessing's condition. They came back to Mbale to be seen by the ENT doctor yesterday. Unfortunately, they were sent away from that hospital and told to come back next week Wednesday. They will spend Tuesday night at CURE so they are already in town for the appointment. Both Margret and Blessing are doing well. Blessing is growing and is more active and this makes Margret very happy. Please continue to pray for healing for Blessing and for the ENT doctor to be there next week.
Blessing was discharged on Thursday which made Margret very happy! They had been in our hospital since early August. This week Blessing will go and see the ENT doctor and they will review her breathing. We will see them again on November 7 at CURE. Please keep Blessing and Margret in your prayers, that Blessing will continue to improve and strength for Margret.
"I am the one who has been caring for Blessing day and night, I have learned how to care for her (Gentle Suctioning). I spoke to my kids at home and they are fine. My neighbor is helping to care for them,” said Margaret. Today may be the day that Margaret gets to go home, we are hoping everything will be successful.
“Today I want to demonstrate to the doctors how I will be caring for Blessing while at home, and if they approve, then we will be on our way,” said Margaret. Blessing had a calm night, she didn’t cry much. Margaret has been in contact with her family back at home and they can’t wait to see her. We hope all goes well today.
“We may be discharged today. The doctors are going to teach me how to care for Blessing from home because we have to wait for six weeks before we are reviewed by the ENT doctor,” said Margaret. As for now, Blessing is doing well, she turns when she hears her name called and we are thankful to God for healing her.
“Blessing is very fine, in fact, we are leaving ICU today. Today is the day for Blessing to be reviewed, but since the ENT doctor is a very busy man I am not sure whether we’ll be able to see him today. If we don’t see him today, we’ll see him tomorrow,” said momma Margaret. Margaret is doing well, we shall keep you updated.
This morning, Blessing was prayed for by Immaculate from our spiritual department. Immaculate prayed for Blessing's healing. Blessing is doing well and soon should be moved out of the ICU, she seems happier than normal and content. Margret is also doing well and she has been spending a lot of today holding Blessing. For a long stretch of time she was unable to hold her daughter because of the oxygen tent. Please keep Blessing in your prayers, that she will continue to improve and for next week's follow up to go well.
Blessing went to Mbale Main Hospital to see the ENT doctor! He looked at her nose and decided to review her again on October 3rd or 7th depending on when he is in town. Hopefully next week, he will remove the tubing and then they will be able to go home. Margret is doing well and her time at the Mbale Main Hospital was fine. Please continue to pray for Blessing, that her nasal passage will heal well and for her to be able to breathe out of her nose and mouth freely.
“Blessing has come,” said Margret as she walked into the ward holding her daughter, they were moved out of the ICU today. Blessing is doing well and she is awaiting a follow up from the ENT doctor. Margret is doing okay ,last night she started having a fever but she has high morale as she is watching Blessing improve. Please keep Blessing in your prayers, that her follow up from the ENT doctor will give her a positive review and for them to be able to go home soon.
It’s Blessing’s fourth day post op and she is doing well, breathing without the addition of an oxygen mask or tent. She is also feeding well. Margret is doing well, they received a handful of get well messages which brought a smile to her face. Blessing’s doctors will call the ENT doctor to discuss the next step in her recovery. Please continue to pray for Blessing, that she will make progress and for them to be able to go home soon.
Blessing and her mother Margret traveled to Mbale Main Hospital this morning at 9:00, Nurse Moses escorted them. This afternoon at a little past 3:00, they returned. Blessing had a surgical canalization to allow her to breathe through her nose. She is once more in her bed in our ICU, and seems to be doing well. Please keep Blessing in your prayers as she recovers from her most recent operation.
“I’m very happy, I’m very happy. I spent four weeks in ICU, now that I hear I’m going to the ward, I have to be happy,” said Margret. When Margret and her daughter arrived at CURE she was unnamed so she was given her mother’s name Margret, a few days later mother Margret began thinking of changing it to Blessing, which she has. From this day forth baby Margret is now Blessing. Margret and Blessing are being moved to the ward, Blessing is breathing well and feeding well. This morning she was visited by high school students from a Children’s Home a few miles out of Mbale. “Tomorrow to main hospital for operation,” said Margret. Tomorrow she will travel with Blessing to Mbale Main Hospital to be examined by the ENT doctor and possibly have surgery. Please keep Blessing in your prayers.
“Margret is doing well, God is good”, said momma Margret. On Thursday, Margaret will be transferred to Mbale Regional Referral Hospital to meet the ENT. Margret’s family is aware of the new developments, they are anxious, but hoping for the best. Let us keep praying for her.
“On Thursday she will be operated again at Main, again we will need your prayers,” said Margret’s mother. Today the ENT doctor arrived and examined her. She will go to Mbale Regional Referral hospital which is a couple of minutes away from CURE where they will do a general examination under anesthesia. Depending on what he finds, she may have another operation. Please keep Margret in your prayers, that her procedure on Thursday will go well.
Margret is doing well and she has continued to improve from surgery. She is still in her tent today. Her doctors are optimistic about her progress and so his her mother Margret. Today they have been opening up one side of Margret's tent to let ambient air into the tent. Please continue to pray for Margret, that she will continue to improve.
“Margret is improving, she is not in a bad condition. Yesterday she was weak, but now, she is improved. I have hope she will be better,” said her mother Margret. Margret is in her tent once more and breathing well. With the added oxygen, she continues to improve in her alertness and breathing. Her mother seems optimistic and has been spending the day in the ICU and sitting outside with the friends she has made. Please keep Margret in your prayers, that her condition will continue to improve.
“Margret is going for operation today, I need your prayers,” said mother Margret. Margret’s operation was successful. Our doctors placed a shunt to relieve the pressure from her hydrocephalus and she is currently in PACU. She will soon be moved back to the ICU. Margret and her mother received several get well messages this morning which were an encouragement for mother Margret. Please keep Margret in your prayers, that she will have a swift recovery.
Margret was able to stay out of her tent until last night at 8:20 when she needed to begin oxygen therapy again because she had respiratory distress. She is once more in her tent, and today her doctors tapped her head to decompress the ventricles. She continues to be fed through an OG tube and awaits surgery. Please keep Margret in your prayers, that she will continue to improve and become less dependent on oxygen and soon be able to go into surgery.
When mother Margret heard the news that her daughter was taken out of her oxygen tent she rushed into the ICU with excitement to see her daughter. She is hopeful that she will be able to breathe without the help of the tent. Margret is awaiting both surgery for hydrocephalus and a visit from the ENT doctor. Margret says, their weekend went well and they are both doing well. Margret gives thanks for the prayers they have received and requests continued prayers for them.
Margret continues to await surgery and a visit from the ENT doctor. This morning her nurse performed a gastric aspirate to collect a blackish brown substance that was collecting in Margret’s OG tube, it has been taken to the lab for tests. Please keep Margret in your prayers, that her breathing will improve and she will soon be able to go into surgery.
Margret is awaiting a plan for surgery, she continues to be in her oxygen tent and waiting for the ENT doctor. Her mother is doing well, she has been sitting outside the ICU and talking with fellow mothers. She seems optimistic and is waiting for Margret to be scheduled for surgery. Please pray for strength for Margret and her mother and for the upcoming operation to be successful.
This morning Margret was told that her daughter had developed hydrocephalus and would need another operation. At this time, a date hasn’t been scheduled. After her procedure she will most likely be transferred to Mulago Hospital because there is still no sign of the ENT doctor. Please keep Margret and her mother in your prayers that her upcoming operation will be successful and for her breathing to improve.
Margret continues to be in the ICU and in her oxygen tent. Her status has changed little over the weekend, however, there is talk of transferring her to Mulago National Referral Hospital to get treatment from their ENT department. Her mother is doing okay, she has seen improvement that Margret is crying again, which is a positive sign to her since its been a while since Margret cried. She is asking for prayers for Margret that she will be healed.
Last night Margret had a generalized seizure, the first in about three weeks. She continues needing to be in her oxygen tent and awaiting the ENT doctor. Margret seems a little discouraged at the lack of progress, but has been reading her Bible and resting today. Please continue to pray for Margret, that she will be able to breathe on her own soon and encouragement for mother Margret.
“Margret is in a tent, she is just there, she will be fine. Just pray to God she will be better,” said mother Margret. Her daughter was placed in an oxygen tent to wean her off oxygen slowly, her NG tube runs from her mouth up and out of the tent so her mother can feed her while she is inside. Margret continues to wait for the ENT doctor to arrive and assess her. Please continue to pray for Margret’s condition to improve and strength for her mother.
“She will be okay,” said mother Margret. Yesterday, Margret had difficulty breathing and has stridor, a result of having an obstructed air flow. She is once more on oxygen, and still in the ICU and her mother seems to be doing well, much better than yesterday. Margret has been able to stay in communication with her husband and keep him informed. Please pray for Margret’s breathing to improve and for her to be taken off oxygen.
“It was good because we are still having life,” said mother Margret about the weekend. Margret is still fighting periodic respiratory distress and awaiting the ENT doctor, she is feeding well through an NG tube and has no seizures or fevers. Mother Margret continues to be doing well, today she spent time doing laundry and enjoying the company of her friends in the ward. Please keep Margret in your prayers that her breathing will continue to improve.
“There is a slight improvement in Margaret’s health,” said Nurse Denis. Margaret’s CSF still has infection, but that is being treated and she is being monitored closely. Please keep her in your prayers.
“Margret is there, she will be better,” said momma Margret. Her daughter continues to be on oxygen and in the ICU awaiting the ENT doctor. Today her doctors will do a CSF tap to check for any infections, and growths. Margret seems to be very strong during this time and optimistic. Please continue to pray for Margret’s breathing to improve and strength for her mother.
Margret has improved! She is no longer intubated, she is on an oxygen mask which is a big improvement, but there continues to be no sign of the ENT doctor. Her mother still has high spirits and is encouraged by the progress. Today, mother Margret went to chapel and spent time outside the ward socializing with other mothers. Please keep Margret in your prayers, for her breathing to continue to improve and further encouragement for her mother.
“I have nothing to do, I left all to God,” said Margret. Her daughter continues to be intubated and is plagued by respiratory distress. The plan for Margret revolves around the ENT doctor examining her but until that happens, her status will stay the same. Please be praying for him to examine her and for there to be a plan to get her breathing without assistance. Margret had a good weekend and she is celebrating the fact that they are alive.
“Continue praying for us,” said Margret. She is still very optimistic, however, little has changed over night. Today she was scheduled for a CAT scan but the ICU is out of portable oxygen tanks so she will have to wait for the next air delivery. This morning a CBC was done and there is a possibility she will be seen by the ENT doctor before next week. Please continue to pray for Margret's improvement, continued support for her mother, and for the ENT doctor to be able to come soon.
“Margret is better,” said her mother, she is still intubated and in the ICU, but her mother is confident she will get better. Her doctors continue to wait for a consultati,on from an ENT doctor who may come next week. Please keep Margret in your prayers that she will improve and soon be off oxygen.
Margret continues to be on oxygen and in the ICU. Her nurses are optimistic that the ENT doctor will examine her today. Samuel and Margret have been spending lots of time sitting just outside the ICU, they both are of high morale, and Margret seems confident that her daughter will improve. This morning they received a get well message which has encouraged them greatly. Please continue to pray for Margret, that a plan can be made to improve her breathing and for her breathing tube to be removed.
Late last night, Margret had another respiratory distress about fifteen minutes after feeding. She is still in the ICU and has been intubated. Today she is having an x-ray, blood work and is hopefully going to be seen by an ENT surgeon about her compromised airway. Her mother and father are both doing better than yesterday and have spent most of the day sitting outside the ICU. Please continue to pray for Margret, that her breathing will improve and that she will be able to be transferred out of the ICU.
On Saturday, Margret was moved to the ICU due to respiratory distress, a result of her choking on milk. Margret is currently stable, she is still on an oxygen mask however, there is a plan to wean Margret off the oxygen possibly starting as early as tomorrow. Her feeding has been good and if she continues to feed well and is able to breathe on her own, she will be moved to the ward. Her mother Margret has been worried seeing her daughter in the ICU. Please pray for Margret’s breathing to improve and for strength for her mother.
“Margret is somehow okay, she is improving,” said mother Margret as she looked down at her daughter. It was very nice for Margret to have her husband here yesterday, he was able to spend time with them in the ICU. Margret was intended to be moved out of the ICU yesterday, however, there was no space in the ward, but this morning ,space opened up and they were given a bed by a window. “Thank you for your prayers, your prayers have been answered,” said Margret about those who have been praying for them.
Margret is being moved out of the ICU today! Her mother and father, Margret and Samuel, are both at the hospital. They are very pleased with the operation and happy. She can now move Margret more easily without causing her pain. Please keep Margret in your prayers, that she will have a full recovery and develop normally.
“I’m so worried. Be praying for her she is going for surgery,” said Margret about today's operation. Margret had an encephalocele repair done and the operation was successful. The growth was removed at the base and she is now resting in PACU. She will soon be moved to the ICU where she will spend the night. Please keep Margret in your prayers that she will have a full recovery!
Margret and her mother have had a good day, they slept well and have been spending the day in the ward. This morning Margret was told her daughter's doctors are consulting an outside doctor before they schedule her for surgery because there is concern about Margaret's ability to breath through her nose and the amount of brain and blood vessels outside the skull. Please keep Margret in your prayers that her doctor will come up with the best plan of action for her.
Margret and her mother had a good weekend, it was quiet and they spent most of it in the ward. Today, her mother attended chapel and sang songs of worship. Over the weekend, Margret had a NG tube placed to improve her feeding. Unfortunately yesterday, she began running fevers which has worried her mother. This afternoon several tests will be run including electrolytes and a complete blood count. Her medical team has been working on a plan for her and what the best course of action is. Please keep Margret in your prayers, that she will have a successful operation soon.
Margaret and her daughter arrived at CURE on Sunday and have gotten settled into the hospital and routine, Margret has made a few friends but spends most her time in bed because Blessing becomes uncomfortable when she is moved. Please keep Margaret in your prayers.
Send a Message to Blessing (Margret)
We'll deliver your message to Blessing (Margret) as soon as we see her.