Lonjezo

From Malawi Send Message Follow
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  • Age9
  • Conditiona bone condition
  • Next Appointment 07/02/2018
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CURE in Malawi

The picture above is of CURE in Malawi. Everyone who serves with CURE in Malawi, from medical professionals to office staff, are dedicated to providing the highest quality medical and spiritual care to people who, without CURE, couldn't find it and couldn't afford it, just like Lonjezo. To do that, we're inviting you to partner with us.

We need to raise approximately $1000 to treat children like Lonjezo. When you give a gift through Lonjezo's CUREkids profile, your contribution will help us continue our work in countries like Malawi. Have more questions? Ask us.

Monthly Giving: Be a Hero!

When you partner with us monthly, we'll send you an email each month to introduce you to a different child who was helped because of your generosity. You can choose to follow their updates and send them get well messages. That means that each year, you're a part of helping 12 different children, beginning with Lonjezo. We call it being a CURE Hero!

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See more options for partnering with us financially here.

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Lonjezo's Story

“God please heal my daughter until she is made perfect and whole like other children. It really hurts me when she asks me ‘Mom, will I ever walk in my life?’” responded Ivy, Lonjezo’s mother when we asked her how she prays for her daughte… Read more

“God please heal my daughter until she is made perfect and whole like other children. It really hurts me when she asks me ‘Mom, will I ever walk in my life?’” responded Ivy, Lonjezo’s mother when we asked her how she prays for her daughter.

Lonjezo was born with weak bones, and as a result her bones break very easily. This condition was discovered when Lonjezo was only 2 months old after she woke up with a swollen leg. When Ivy took her to the hospital for an x-ray it was discovered that she had a broken femur. Lonjezo’s leg was put into plaster for a month, but when it was removed the leg was still broken. They decided to put her in traction for two months, but even that didn’t change anything. Ivy and Lonjezo were sent home in the same condition.

Early last year, Lonjezo was referred to CURE for treatment and we’re praying that we’ll be able to help her take her first steps! Lonjezo has never walked, and she experiences pain because of her condition. Lonjezo is the third born of four children in her family and her parents work as farmers to support them. Please pray with us for Lonjezo's healing!

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Latest Updates

Jun 08, 2018

"I'm leaving this thing, I'm not taking it," Lonjezo says in disgust about her walker. In a disappointing turn of events, the crutches we have are too big for her since she needs a special, very small size, so she needs to go home with the walker! She'll go home for three weeks but the physiotherapists are trying to get a special pair of crutches for when she returns, which she says will make her very happy. She's going home today since the physiotherapists are happy that she's walking better. "I'm excited to see my little brother Mikey when I get home. We play and go to school together," Lonjezo says. Please be praying for Lonjezo and Ivy as they travel later today! Photo of Lonjezo

Jun 06, 2018

Lonjezo is still in the hospital for physiotherapy and is very happy to be moving on to crutches today! Ivy says, "She's been telling the doctors, 'If you give me the walker, I will not come again. I'm tired of these things, I want crutches! I will steal the crutches if you don't give them to me.'" Photo of Lonjezo

Jun 04, 2018

Today Lonjezo and Ivy came in for a review and we managed to bring them get-well messages!

"Thank you for your messages. I am very grateful for what you are doing. Her pain is gone now and I believe it is because of your prayers," says Ivy, Lonjezo's mother, when we brought them messages.

"Before, I was not walking, but now I can use the walking frame. I feel like I can get rid of it now but my mom says to wait until the doctors say I can," Lonjezo says.

"I am now able to associate with my friends, the neighbors around me, better than before. Before my daughter had her operation, they were intimidating me, mocking, saying I have a child who doesn't walk. Now that Lonjezo is walking, they are ashamed of what they said."

Lonjezo is being readmitted for physio and we look forward to hanging out with her this week! Photo of Lonjezo

Apr 23, 2018

Lonjezo and Lufina are saying their goodbyes today! Lufina was making Lonjezo laugh so much this morning while they waited to see the doctors. Lonjezo has been discharged home and we'll see her in clinic on June 4th! Please pray for safe travels! Photo of Lonjezo

Apr 20, 2018

Lonjezo is recovering well and has been around the ward with her teddy, watching tv and playing with the other kids. She's been laughing a lot since she's in the bed next to another CUREkid, Lufina, who is always a riot! She'll be headed home soon but should be back in about six weeks! Photo of Lonjezo

Apr 19, 2018

Lonjezo had another operation yesterday! Dr. Lubega took out and replaced the rush rods in her right leg, since her left leg is still okay for now and it's just the ones in the right that are getting too small. Please be praying for her as she recovers in the ward! Photo of Lonjezo

Apr 17, 2018

Lonjezo has been up and out of bed today! There's a bunch of little girls in the ward and she was having a grand time in the playroom drawing with them. Funny from the Spiritual Team is making sure the kids get lots of time to enjoy themselves with playtime! Photo of Lonjezo

Apr 16, 2018

Lonjezo is back for another operation! As we said before, she's outgrown the rush-rods in her legs and they will need to be replaced with longer ones. Please be praying for her as she goes in for surgery later this week! Photo of Lonjezo

Feb 19, 2018

Lonjezo came in for some physiotherapy today! She was complaining of pain in one of her legs so the therapists sent her back to the doctors. Upon reviewing her x-rays they decided she needs a rushrod revision in that leg and will be readmitted on April 15th. Unfortunately kids with brittle bone disease need constant replacement of rushrods as they outgrow them, until they reach maturity. Please be praying for her! Photo of Lonjezo

Dec 18, 2017

Our little friend with brittle bone disease, Lonjezo, is back! “CURE has treated us well, Lonjezo is now able to stand and walk a few steps which was impossible before we came here. She is now in Standard 1 at a local primary school in Thylo, in the past I used to carry her everywhere, but now I can just leave her home playing with her friends,” says Ivy, Lonjezo’s mother.

“It was difficult spending farming season in the hospital, but now that she is healed we will be just coming here for physiotherapy. I urge all parents who have kids with similar conditions, those who were born deformed, to seek medical attention as soon as possible. Take Lonjezo for example. My daughter is healed now, we used to have sleepless nights since she would cry all night because her legs were hurting her. Now I sleep peacefully and her legs don’t hurt anymore. Last, I thank CURE for treating my daughter. May they continue treating other kids and I thank God for healing her.” Photo of Lonjezo

Nov 20, 2017

Lonjezo is back! Physical therapist Patrick says she's doing well. Although she still needs a walker to move with, she can walk, as well as stand without support for a couple minutes. Because of her brittle bones she will probably always be a bit weak but she's improving! Also, she's started going to school in a wheelchair! We're so excited that she's managed to get back to her education! Photo of Lonjezo

May 26, 2017

Lonjezo has been discharged! Turns out she had a ton of rush rods replaced, in both femurs and one of her tibias. She can now walk on her left leg, just not the right because of the fracture. Since she has brittle bones, Kyle said if her one leg can't support her, they'll need to find a wheelchair for her. The physios are going to work it out later today to see if they need to give her one or not. Please be praying for her as she heads home and comes back July 3rd! Photo of Lonjezo

May 25, 2017

It's day one post op and Lonjezo isn't crying anymore, but she doesn't exactly look happy to be here either - she was in the physio department and we bet she wasn't looking forward to therapy! Photo of Lonjezo

May 24, 2017

Lonjezo had a successful surgery today! Dr. Karolina and Dr. Nicholas cut her bone to make it straight and then put a rush-rod through to stabilize the bone and keep it in place. Lonjezo is recovering now, but is in a lot of pain, so please be praying that the painkillers the nurses gave her will kick in and that she'll feel better soon. Photo of Lonjezo

May 23, 2017

Lonjezo is having her next operation tomorrow! Please be praying for her as she has yet another rushrod. It's tough for kids with osteogenesis imperfecta (brittle bones), since they're always outgrowing the rush rods in their bones and needing new ones, it means lots of operations, but Lonjezo handles it all with such grace! Photo of Lonjezo

May 22, 2017

Lonjezo's being readmitted! We're not 100% sure why yet, but looking at her X-ray it looks like one of her femurs is fractured, so she'll be having another rush rod to straighten it out. Please be praying for her as she has an operation later on this week! Photo of Lonjezo

Mar 28, 2017

Lonjezo is back for a physio appointment! She needs a new shoe raise but unfortunately, her mom didn't bring the right shoe to get it, so she'll need to come back again soon for that. Diana, our physiotherapists, says she's doing well and is walking around a bit, but that she cried during physio. Please be praying for her! Photo of Lonjezo

Jan 17, 2017

We saw Lonjezo in clinic today for a follow-up appointment! Her mom says she's doing well and is getting steadily better! She's just getting some physiotherapy and a shoe raise for today. We don't know when she'll be back for her next rush rodding, but she should be set for a couple years before she outgrows the rods that are already in! In the meantime, we'll probably see her every couple of months for checkups and physiotherapy. Photo of Lonjezo

Oct 24, 2016

Lonjezo is back for another appointment! Because of her brittle bones, she has another fracture in her left leg, so Rehab Tech Patrick sent her for an xray and a checkup from the doctors. The xray looks like she's healing well, but she'll be back for another review January 16th. Please keep her in your prayers! Photo of Lonjezo

Sep 12, 2016

Lonjezo came in for a follow up appointment and some physiotherapy with the new rehab tech Diana! Lonjezo is doing well, she just had her cast off but can already stand and bend. Ndapile, a physiotherapist, was impressed by how strong she is! We'll see Lonjezo again on October 24th for another checkup! Photo of Lonjezo

Aug 01, 2016

Lonjezo gets to go home today! We caught a photo of her lying on the plaster room table while she got her cast completed before she left! We're going to miss her sweet smile! With this rod both of her legs should be straight and all set for walking, she won't need any more operations in the near future. She will eventually need to have longer rush rods put in her bones, but hopefully not for a couple years! She'll be in September 12th for a checkup here at CURE Malawi so we can see how she's doing! Photo of Lonjezo

Jul 29, 2016

Lonjezo looked like she was crying when we walked up to her today, but when she saw the camera she immediately grinned for a photo, so we're not sure if she's in pain from her operation or if her eyes are just watering since our translator is on vacation this week! Either way please be praying for her as she recovers! Dr. Lubega straightened her tibia yesterday, cutting a wedge out of the bone to make it straight and then using a rod and plate to hold it in place as well as strengthen it since her bones are brittle. Photo of Lonjezo

Jul 28, 2016

Lonjezo is waiting for a blood test to make sure she's all set for surgery before she goes in. It's taking a while so other kids have gone in before her. Please be praying she comes back with a high HB count and no malaria so she can go for her surgery later today. We'll (hopefully) post details and photos tomorrow of her operation! Photo of Lonjezo

Jul 27, 2016

This little cutie is going to have her operation tomorrow! Please be praying for Lonjezo as she goes to theater to have her femurs straightened! We're so excited for her to hopefully be able to stand in the near future! Photo of Lonjezo

Jul 26, 2016

We brought Lonjezo some get-well messages today while she was finishing up her lunch and her mom was in the bath. She said to tell you that, "I'm good!" She told Lawrence, "ask her [Avanell] to take a picture of me with my Nsima and send it to them." So here's a photo of Lawrence, Lonjezo, and Nsima for you! Nsima is a staple dish here, thick maize flour paste, which you eat with sauce and veggies. Photo of Lonjezo

Jul 25, 2016

Guess who's back! Lonjezo is here for another operation! Part of the issue with Osteogenesis Imperfecta or brittle bones is that it continues to come back - having brittle bones means a multitude of tiny (and sometimes large) fractures build up over time, bending the bones, especially the weight bearing leg bones. We can stabilize the bones with metal rush rods, but when the child outgrows them, they need to be replaced. The doctors are going to xray all of Lonjezo's leg bones to see which ones are causing the most trouble and need to be dealt with first, and afterwards they'll plan for another operation. Please be praying for her! Photo of Lonjezo

Apr 27, 2015

This cheeky little one is going home today! Woohoo! She's pretty excited. Thanks for all your prayers and support while she's been here, Lonjezo has loved receiving your messages and knowing that you're praying for her. We'll see her again in about 6 weeks or so, keep a lookout for another update then! Photo of Lonjezo

Apr 24, 2015

Laughs-with-Lonjezo are becoming part of our daily routine here at CURE Malawi! We love stopping beside her bed for a chuckle! It would seem that our visits make her as happy as she makes us, because she grabs us by the hands and won't let go when we try to say goodbye. For a little thing she's pretty strong! Photo of Lonjezo

Apr 23, 2015

Every time we show her the photo we just took of her, this is the face Lonjezo makes. We love her cheeky grin and sparkling eyes! Photo of Lonjezo

Apr 22, 2015

Happy Lonjezo won't let anything stop her smiling! She's doing so well after her surgery yesterday! Most of the day has been spent in bed, but she's got a prime position in the ward - right in the middle beside the corridor everyone walks through. So she's got plenty of people around to keep her company! Please keep praying for her! Photo of Lonjezo

Apr 21, 2015

Before her surgery this morning Lonjezo was sitting on the operating table smiling up an absolute storm. This kid is the happiest we've ever seen anyone who was about to be operated on! In theater, our surgeons removed two wedges from her thigh bone. This straightened Lonjezo's leg, which will hopefully mean that in the future she'll be able to stand on it! She's recovering now, so please pray for her. We'll update you tomorrow and let you know how she's feeling! Photo of Lonjezo

Apr 20, 2015

Lonjezo's been missing her two older brothers - back at home they are her favorite playmates! Luckily she's still bright and cheerful, and had many a cheeky grin for us today. She's been scheduled to have surgery tomorrow, so please pray for her and the surgeons as they prepare. Photo of Lonjezo

Apr 17, 2015

Here's Lonjezo with her pal Florida - we love their cute smiles, and we love seeing friendships develop over tough situations. We're pretty sure that there's many other places that these kids would rather be than in hospital, but they truly make the best of it, and the friends they make are a big part of that! Photo of Lonjezo

Apr 16, 2015

Lonjezo is the sweetest little thing! She's going to be here over the weekend and will hopefully receive surgery early next week. This little cutie has never walked, and is terrified to stand in case her legs don't hold her up. We're so glad she made it here, and we pray we'll be able to help her not only to stand, but to walk and run and jump! Photo of Lonjezo

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