Mary's Procedure on
Dinah laughs at us as we struggle to pronounce her last name! At fifteen characters long, it's safe to say that she and baby Mary currently have the longest last names in our CURE Uganda ward. Thought it's hard to pronounce, their last name has a b… Read more
Dinah laughs at us as we struggle to pronounce her last name! At fifteen characters long, it's safe to say that she and baby Mary currently have the longest last names in our CURE Uganda ward. Thought it's hard to pronounce, their last name has a beautiful meaning, as she tells us - "it means we will endure". Mama Dinah really has had to endure the past few months, as taking care of Mary has been really tough.
Mary was born in October 2018, and is the fourth child in her family. She came to CURE Uganda and had an ETV/CPC procedure in December of 2018. This is the procedure where our neurosurgeons create a small hole in one of the ventricles in the baby's brain, to allow their fluid to drain better and prevent their head from swelling. Unfortunately, Mary required an additional surgery in April 2019 to place a shunt. The shunt is another method that helps fluid drain from the babies brains - it's connected to a thin tube that directs the fluid into their bellies, where it can be reabsorbed by their body.
Two weeks after her surgery, Mary started having a fever and vomiting, and there was some pus at one of the incision sites for her shunt. The neurosurgeons here at CURE Uganda removed her shunt because of the infection, and they are waiting for the infection to clear up before they install a new shunt. Dinah has been enduring a long stay here at CURE with baby Mary while she is worried about her three other children and really missing home. Despite her homesickness, we know our doctors are giving her and Mary the best possible care! Thank you for your support and prayers for Mary!
Dinah and baby Mary were discharged on Sunday and began their long journey home! The doctors were able to tell that, although there were some small leaks around her shunt, the fluid was still flowing well. Because her fluid pressure and flow levels were good, they were able to send her home without additional surgery! We're so glad for this good news. Dinah asked us to please thank everyone who has been praying and sending get-well messages. They were such a big encouragement to her!
Mary and her mama Dinah are back with us at CURE Uganda. We caught them in a cute moment together this morning! Unfortunately, there has been some swelling around Mary's shunt and after consulting with our Western Uganda Care Coordinator, Jackson, and the CURE Uganda doctors, Dinah brought Mary all the way back to see us here at the hospital. Their family lives in Western Uganda, so they had a very long bus ride to get here and arrived at 2 in the morning last night! As you can imagine, Dinah is thankful to be safely back at CURE, but also feeling pretty discouraged after all that she and Mary have been through! Would you please pray for hope and encouragement for our friends today? Thank you so much!
Dinah and Baby Mary were discharged from the ward this morning and Dinah was so excited to be heading home! They have a long journey ahead of them and should arrive home around 9pm this evening. Thankfully, their home is close to where the bus will drop them off. Dinah was a bit worried about traveling so far with a small baby who is still recovering so please be praying for safe travels for them. Yesterday, Dinah showed us the bible study in Mark that our spiritual team gave her and she is working through. We're praying she would be encouraged by God's truth as she learns more about Jesus!
This morning we visited with Dinah and Mary in the ICU and they were getting ready to move back to the ward. We read Dinah the get well messages you have sent, and she was so encouraged! Dinah works as a bursar at a school managing the finances, and since the Ugandan schoolchildren (including her own kids) return to school from a break on Monday, she's really eager to get home. We are hopeful that Mary will continue to heal well so they can go home soon. Thank you so much for your prayers and all the get well messages!
Mama Dinah was a bit nervous when we talked with her this morning, but also glad that Mary was able to have her surgery - she was one of the first babies operated on today. Dr. Justin Onen and visiting Australian neurosurgeon Dr. Matthew Gutman operated on Mary and inserted a new shunt. Everything went well, and Mary is resting and recovering now in our CURE Uganda NICU. Thank you for your prayers for Mary and her mom!
Thank you all for praying! Dinah was very encouraged this morning when the doctors told her that they feel Mary can have surgery tomorrow! Her CSF glucose levels have increased, and they feel more comfortable that they can install a new shunt for Mary. Annet from our Spiritual Department visited with Dinah and showed her our library of books that moms can borrow. Dinah chose a book from the library and Annet gave her a Bible study to work through, so she was really excited to get started on the Bible study, reading the Bible verses from her mobile phone. We're so glad that Dinah is feeling encouraged and thank you for your prayers!
Dinah shared with us this morning that she really is missing home, and her three other children, ages 9, 7 and 4. Baby Mary has proven to be a bit of a mystery! Her glucose levels are low, which means she has a bacterial infection of some sort, but when our lab scientists try to grow the bacteria in the lab, nothing is turning up. It's quite a puzzle! Our neurosurgeons and doctors want Mary to be clear of infection before they install a new shunt for her. Please pray for wisdom for our scientists, doctors and neurosurgeons, and for patience and courage for Dinah as she waits.
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