Adam's Procedure on
Adam is Susan’s fifth child and he is special to his family because he is the child born after twins, who are considered to bring good luck in her tradition. He however was born with spina bifida, a condition that neither Susan nor her husband ha… Read more
Adam is Susan’s fifth child and he is special to his family because he is the child born after twins, who are considered to bring good luck in her tradition. He however was born with spina bifida, a condition that neither Susan nor her husband had seen before. “I was so scared when the nurse showed me the wound on his back,” Susan recalls. She had given birth through C-section at a government hospital which immediately referred Adam to an even bigger hospital, but Susan couldn’t travel immediately because of the fresh wound from her C-section. However, two days later, she got the strength to travel and ended up at CURE Hospital. Her other children are being cared for by their grandmother but are aware that their brother Adam will be needing surgery. Susan is a peasant farmer and her husband is a truck driver and with their small incomes, Susan anticipates some financial struggles as she raises Adam. Please pray for Adam's healing and that Susan would trust in God's loving provision!
Adam is going home today! Suzan has learned how to dress his wounds and he has completed his antibiotics today too. He had only one episode of vomiting which the doctor thinks will soon pass. “I just thank God that am going back home with him alive,” Suzan said. Please continue praying for Adam because the dressing and treatment of his wounds will continue from home.
“Adam, stop vomiting, we need to get back home,” said Suzan to baby Adam. He is still vomiting but is talking oral rehydration salts. Today Suzan will be taught how to dress Adam’s wounds so that when they are discharged she is able to take care of him at home. After feeding him and as Adam was sleeping, Suzan took time to read her get-well messages then went to the activity room. Please keep encouraging Suzan and praying for Adam!
“Adam is vomiting but is generally getting better. We are keeping him for two days on antibiotics, then we let them home,” said Dr. Michael. Adam is already back in the ward and he is feeding well. Please continue to pray for him!
Over the weekend, Adam managed to get the long awaited fresh frozen plasma. He had a calm night and was in OR for a washout (Irrigation of the ventricles) this morning. The procedure was successful and he is currently recovering in the ICU where he and Suzan will also spend the night. This morning Suzan was reading her Bible and praying as she waited for Adam to be taken to OR. “We will let them go home after the washout and if the fluids are clear when they return, Adam will have a shunt placement,” Dr. Noah said. Let us remember both Adam and Suzan in prayer this evening.
“I am still praying for him,” Suzan said. Our medical team is still working hard to ensure that he gets fresh frozen plasma and then his washout. He gained more weight over the weekend which is good because he will be going into surgery soon! Your prayers for Adam and Suzan are appreciated!
“First of all, Adam is still on antibiotics and secondly we have to transfuse him before the washout because he needs fresh frozen plasma,” said Dr. Noah. Adam’s mother is willing to donate the blood, but the lab has to first run tests to ascertain whether they are in the same blood group. We didn’t chat much with Suzan because she has been in prayer most of the day. Please join us in praying for Adam's healing and strength for Suzan.
“Today Adam is better. If it wasn’t for the vomiting, his kilos would have increased,” Suzan said. Adam is on his 12th day on antibiotics, and he is also on special nutrition therapy. Suzan spent her day in the activity room knitting and nursing her baby. Please pray without ceasing for Suzan and Adam as they continue receiving treatment with us.
Adam didn’t have the best weekend. He has been fighting fevers and he isn’t feeding well. Today he went to the labs for several tests to help ascertain what the problem could be. His weight is also being monitored and the good news is that he is progressing in that area, yesterday he was 4.25 kilograms and today he is 4.40 kilos. He is still on antibiotics and his CSF will also be tapped and sent to the labs for analysis. “Every day we are taking medicine - everyday,” said Adam’s discouraged mother Suzan as she fed him his afternoon syrups. Please be praying for them in this trying time and we invite you to send Suzan a note of encouragement and prayers through our get well messages!
Adam was in the OR today for another washout. Suzan was with him all morning until he headed in for surgery at 1:30pm today. “I am in prayer,” she said. While Adam was in the OR, Suzan read some of her get-well cards and attended devotions. The washout didn’t take long, he is stable and will spend the night in ICU. Please be praying for baby Adam.
Please be praying for Adam because his cerebrospinal fluids are still not clear so tomorrow he will be going to surgery for a washout. Today he will be continuing with his antibiotics as he waits. Suzan, however, says that he had a calm night and she was able to have sufficient sleep too. Please be praying for Adam.
“Adam vomited this morning, but the doctor told me that they will tap his fluids to reduce the pressure in the head,” Susan said. Today is his sixth day on antibiotics. This morning, the first thing she did was to wash their laundry and then she fed him. During the ward rounds, the doctor encouraged her to endure for the full period of treatment so that Adam is discharged healthy. Suzan says she hopes to lead praise and worship during today’s devotions.
Today is Adam’s fifth day on antibiotics. His cerebrospinal fluid was assessed over the weekend, but they aren’t clear yet. “God should help me”, Suzan said as she cleaned Adam’s feeding bottles. Please remember this family in your prayers.
“Adam is going to be here for two weeks until he finishes his antibiotics and gets a shunt replacement”, Dr. Noah said. Susan is okay with staying here for that long and she told us that it will help her reduce travel costs. She said that Adam is not irritable, sleeps peacefully, and feeds well. Please be praying for him.
Adam had a calm night in the ICU after a successful shunt removal! He has already been transferred back to the general ward. As it usually happens when she is at CURE, Suzan is always actively involved with the spiritual ministry which she always looks forward to participating in. Adam has embarked on a regiment of antibiotics. Please be praying for him.
“Ever since we left CURE, I knew that we had to come back because his head was still swollen, but the doctor had explained everythingn to me well. He said that they repaired his shunt, but needed to place another one later. Today, his doctor told me that they will remove his shunt and that he will let me know on the way forward,” Suzan said. Indeed, Adam was in surgery this morning for a shunt removal and irrigation. He will be on antibiotics as the surgeon plans for a new shunt placement. Please keep Adam in your prayers.
“I pray that the surgery is successful. God please help me!” Suzan exclaimed. She told us that she had decided to fast and pray for Adam today and her husband back at home was doing the same. Adam’s shunt was repaired successfully and he is now recovering in the PACU. He will be transferred to ICU where he will spend the night. Please keep him in and his mother Suzan in your prayers!
“All I do is pray. I pray every time that I am free, and my main prayer is that God helps Adam to recover soon. This morning Dr. Peter told me that he will be in for surgery tomorrow and we are prepared. He has been calm just feeding all day,” Suzan said. She is always in touch with her family and says that everyone back at home is healthy and that they are seriously praying for Adam. Please remember Adam and Susan in your prayers too!
“Adam has been fine, and his head is actually reducing in size as you can see. The only problem is that the tube (shunt) started to swell about a month ago,” Suzan said. Suzan kept monitoring Adam’s shunt, but it just kept swelling although it wasn’t hurting him. “I could touch it and he wouldn’t cry, when he started getting irritable when I touch it is when I decided to bring him because I then realized that it is a serious problem,” Suzan added. She then took him to a mobile clinic in Kampala where she met with our doctors who advised her to bring Adam back to CURE Uganda. Our medical team assessed him this morning and they believe that he has a blocked shunt. A plan for his treatment will be made later on in the day. Please be praying for him.
“Finally, we have been discharged before Christmas. I am happy that I will be with the whole family,” Suzan said. Immediately when she was told that Adam was going home, Suzan rushed to do her laundry because she lives far away from CURE Uganda and needed to catch an early bus. She told us that she will travel for nine hours before she gets home. Please be praying that God gives Adam strength as he and his mother travel home.
“Adam will be fine. I feel happy because I am seeing a difference,” said Susan. Adam had a calm night in the ICU and Susan was able to get a little sleep. This morning they are being transferred back to the ward which is one step closer to home. Susan called home and let father Adam know that the operation went well he was very happy to hear the good news! Susan and Adam have received several get well messages which Susan is thankful to have received. She has been asking God that Adam will have a quick recovery, please join her in that prayer!
“The operation will be successful in God’s name,” proclaimed Susan. This morning Adam went into surgery where Dr. Peter and scrub tech Alex placed a shunt. Adam is now in the ICU where he will be reunited with his mother. Before the operation, Susan was asking for prayer and had several staff members pray for Adam’s operation. While Adam was in the operating room and recovering in PACU Susan was sitting on the backside of the ward with her Bible reading and praying for a successful operation. Susan was shown a photo of Adam awake in the PACU and rejoiced, “Glory be to God! God is alive,” said Susan! Please join them in praying for Adam’s shunt to work with out any problems and that he will not develop any infections.
Last night Adam and Susan returned to CURE Uganda a week early for their follow up appointment because Adam’s head has continued to grow prompting Susan to bring him back early. A CT-scan, cerebrospinal fluid analysis, and blood work have been done, his doctors are making a plan for surgery hopefully this week. Susan appeared rather low this morning but she visited the spiritual center playroom which seemed to lift her spirits where she spent time with the other families in the hospital and got her nails painted. Please be praying for Adam to have surgery soon to treat his hydrocephalus and for encouragement for Susan.
Adam was scheduled for an Endoscopic third ventriculostomy with choroid plexus cauterization (ETV/CPC) today but unfortunately Dr. Peter was unable to do the procedure due to Adam having an infection. His previous irrigation was unsuccessful, so Dr. Peter had to do another ventriculoscopy irrigation. Adam will need another operation in the future. While Adam was recovering from surgery, Susan went to the spiritual center playroom and took part in an impromptu Bible study to learn how to better navigate and find things in the Bible. Please be praying for Adam to recover well from the surgery and for comfort and strength for Susan!
“The doctor said he will be taking him to surgery tomorrow. I wish God will work upon him and the surgery will be successful. I have been handing over everything to God,” said Susan. This morning Susan spent time outside the ward praying by herself, she is relying on God for her strength at this time. Adam and Susan have had a quiet day spending time resting. Please join Susan in praying for a successful operation tomorrow and continued strength for Susan!
“Adam is good but the head is growing, that is why I’ve decided to bring him back,” said Susan. Late yesterday Adam and Susan arrived at CURE Uganda. They spent the night and were seen from OPD today. “They told me to go to scan and blood tests. I hope it will be good,” said Susan. As Adam’s doctors are reviewing the scan and blood work they will keep them overnight as they make a plan. This afternoon Susan joined the chapel service where she along with a couple other mothers who were leading the singing. Please pray for wisdom for our doctors in making a plan for Adam and also encouragement for Susan as she waits.
Adam and Susan were discharged over the weekend as Susan had hoped. On December 3rd, they will return to CURE Uganda for a follow up appointment, Adam will be reexamined and may have another operation. Please remember Adam and Susan in your prayers and thank you for encouraging them along the way.
“Spiritually I have added on. I have added to my faith - I have strength, I have grown strong in my belief. It is what God has done to my baby which has made me strong,” said Susan. During their time at the CURE Uganda Susan has been praying and reading her Bible along with regularly attending chapels services and interacting with pastors on staff. This weekend Adam will get his last dose of antibiotics and they will most likely go home, a goal which Susan has been reaching for over the last several days. Thank you for praying for Susan and Adam during their time at the hospital and writing to them to let them know they are being prayed for around the world!
“I am now like an employee of this hospital because I have been here long enough,” Susan joked this morning. Her comfort is from the fact that Adam has only two more days left to complete his antibiotics and after that he will be hopefully fit to go home. Susan received a call from home and was told that one of her other sons back at home is ill too, but she again told us that her faith grows every day and she knows that he will be healed. This morning we saw her teaching a young mother how best to carry her one-month old baby and what positions to help the baby to sleep more comfortably. Please continue to pray for her and baby Adam!
“Adam is fine, he only needs your prayers,” said Susan. This morning Susan went to a chapel service which had some former patients attending it, she was encouraged to see children with her son’s conditions doing well. She is optimistic that they will go home on Saturday. Please continue to encourage Susan and Adam with your prayers and get well messages!
“We are counting days, day by day,” said Susan. According to Susan they have four more days then they can go home. Adam is status quo and his doctors have no new concerns so he continues to be on antibiotics. Susan has her mind on going home, she has lots to do and is looking forward to seeing her family. “I’m strong in God, no one else,” said Susan. During their time at CURE Uganda Susan has stayed mostly positive, she attributes that strength to God. Thank you for praying for Adam and Susan over the last couple weeks, please continue praying for them during their last few days in the hospital.
“Adam is good and I am fine,” said Susan. Adam’s doctors have no concerns, he continues to be on antibiotics and once he completes his treatment, they should be able to go home by the end of this week. Things back at their home are going well, Susan has been talking to them. This morning Susan sat outside the ward and read her Bible as Adam slept. Annette has been reading in Psalms and she has learned that 'blessed are those who walk God’s law'. Adam and Susan received a couple get well messages today, she is very thankful for them and considers them a blessing. Please continue praying for Adam and Susan that they will continue to be encouraged as they await going home.
“We are still here, pray for us to go home,” said Susan. This morning Susan spent time with Mama David who she has become friends with, Susan helped her get ready to leave the hospital. Susan is happy that Adam is doing well but is certainly counting down the days until they can leave. Susan was very curious about Pennsylvania, a curiosity that was sparked from one of the get well messages they had received. We showed her where Pennsylvania was on a map - it is 7,153 miles from Uganda, which in Susan’s words, “Is far away!” Susan and Adam had a normal day at the hospital where Susan did laundry, talked with friends and staff members, and attended the afternoon church service. Please continue to write to Adam and Susan especially if you are familiar with Pennsylvania!
“My mother is doing a great job taking care of the children back at home,” Susan says. She called home and was told that everything is fine although she misses being with her family. The rains have come in her district, so she says her family is cultivating food. Susan was told by the doctors that after Adam finishes his dose of antibiotics he will be discharged but will need another surgery for hydrocephalus at a later date and Susan hopes that it won’t be long from now. This morning she spent some time in prayer with Immaculate from our Spiritual Center. Please continue to remember Adam in your prayers as well as he finishes his antibiotics.
“Adam is good, you can see that he is looking livelier. We are keeping him here to make sure he finishes the course of antibiotics. His mother told me to take good care of him while she goes to pray in the chapel,” Nurse Lydia said. Earlier this morning we spoke with Susan and she said, “I am noticing some improvement in Adam. I just feel low sometimes because my husband is no longer here with me.” Today is his fourth day out of a fourteen-day regiment of antibiotics. Please pray for patience and strength for both mother and child as we continue to treat Adam!
“Adam is improving, the wound is healing. It's not infected, it was a good thing to change (antibiotics) to meropenem,” said nurse Martha who is taking a care of Adam today. Adam will be on meropenem, his IV antibiotic, for a total of two weeks - today marks day three. Susan is doing well, she has been hanging out with her friends in the hospital while Adam has been resting. Adam and Susan have received several get well messages over the last couple days which have been a big encouragement to them - thank you! Please continue to write to Adam and Susan and lift them up in your prayers!
“Adam is good, he is now okay,” said Susan. Adam is recovering well from surgery, he has a good appetite and his doctors have no major concerns! After the surgery, Adam was switched to an IV antibiotic which he will take for at least another week. Although Susan and Adam will still be at the hospital for a while longer, their morale is high. Susan has been holding Adam in her arms and praying for long periods of time. “I have been praying to God to give him spare parts for the body,” said Susan. Along with her personal prayer time, she has been going to the chapel services and reading her Bible. Please join Susan in prayer that Adam will continue to improve from surgery!
“They are taking him to surgery. I have lifted it up to God each and everything. I have been praying that my God help us and the doctors,” said Susan. Adam has gone into surgery where Dr. John and Dr. Jacob attempted to do an ETV/CPC but the cerebrospinal fluid was too murky due to an infection, so they needed to do was a ventricular irrigation first. Adam will need the ETV/CPC done in the future when he is clear of infection. Please be praying for Adam to recover from this operation and for his next one to be successful.
This morning during the ward rounds Dr. John said that Adam may have surgery for hydrocephalus as soon as tomorrow so that Susan and her husband can go home and look after the other children who are under the care of their grandmother. For Susan, this news came as an answered prayer because she has been thinking a lot about the children back at home. Susan’s husband Adam spent some time at the OPD watching music videos while Susan nursed Adam. Please keep praying that Adam’s planned surgery is a success!
“Adam had a good night and I know that he will be fine. My baby is starting to be normal,” Susan says. Her only concern is that she doesn’t have enough breastmilk and is worried as to whether Adam is being sufficiently fed. Our nurses have now put her on a diet of porridge which will help her produce more milk. Her husband is still here with her, he helps mostly with doing laundry and also gives Susan comfort. Adam is on his second day of antibiotics. Please keep him in prayer as he goes through his antibiotics regiment.
Susan has been with her husband sitting by the OR awaiting Adam’s return from surgery. She told me earlier that she was very anxious because none of her children have ever been in an operation before. She was encouraged in chatting with the other mothers who have had the experience of having a child go for surgery. Adam's surgery was successful and he was transferred from the PACU to ICU around 5pm. Please keep praying for Adam and his entire family.
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