Nathan's Procedure on
“Immediately when I gave birth to Nathan, he was put on my chest. I saw the wound on his back when he was being taken to be weighed and I didn’t think that it was serious. I thought that the wound would just be treated by a few injections and t… Read more
“Immediately when I gave birth to Nathan, he was put on my chest. I saw the wound on his back when he was being taken to be weighed and I didn’t think that it was serious. I thought that the wound would just be treated by a few injections and tablets,” Sarah said. It was when Nathan was referred to Mulago Hospital when Sarah realized that the condition is serious, and she said she was shocked. At Mulago Hospital, nothing much was done to treat Nathan so Sarah approached a nurse who advised her to travel to CURE Hospital because Mulago didn’t have the capacity at that time to treat Nathan. That very night, a Tuesday, Nathan and Sarah arrived at CURE Hospital. Sarah said, “The best thing that I got here at CURE is the hospitality. This hospital is very good as I compare it with the other hospitals that we have been to. I can easily talk to the doctors and the nurses." Back at home, Sarah is married to Ambrose. Their first children were twins but one of them passed away so she now has Nathan and Destiny, the firstborn. Destiny is now four and half years old and is in baby class. Sarah’s sister-in-law is watching Destiny back at home. Sarah has been praying for Nathan to have life, she has also been reading the Bible and says that, “I read the book of John and it encourages me and I also read the story of Nathan in the Bible.” Sarah teaches English and literature in a secondary school, and her husband Ambrose is a business man. Please support this family so that they can experience the joy of having a healthy baby!
“We are fine, we are doing well. He smiles - he talks that baby language. I think he tries to sit and can support the head for some minutes,” said Sarah. Nathan and Sarah missed their follow up appointment so they traveled to the hospital today. He had a CT-scan done and was seen by Sam the physical therapist who looked at his feet. As they waited for the CT-scan Sarah moved a flower in front of Nathan which he tracked with his eyes. She tells us that he likes bright colors. Please be praying that Nathan will continue to improve!
Nathan and Sarah went home on Saturday! He will get his stitches out on Sunday and then they will be ready for Christmas. Thank you for your prayers and get well messages!
“He is doing well, he is fine. I’m fine 'cause he had a good sleep and he is fine generally, besides from this pain he is feeling,” said Sarah. Nathan is feeding well and his stridors have reduced. He will be moved out of the ICU and back to the ward today. Please continue to pray for Nathan that he will recover well from his operation.
“They are going to insert a shunt that is what they told me,” said Sarah, she continued, “I came when he was badly off I didn’t know if I would make it here.” On Sunday, Sarah noticed Nathan was wheezing she called CURE Hospital and was told to take him to a nearby clinic, which told her he was fine. However, the pressure on his head was increasing and he continued to have problems with his breathing. “I had lost hope that the baby would not survive,” said Sarah. Sarah and Nathan returned to CURE this morning and Ambrose joined them at the hospital for Nathan’s surgery. Dr. Peter and scrub tech Alex placed a shunt. The operation was successful and Nathan is now in the PACU waking up. Please continue to pray for Nathan that this will be the last operation he needs and for his recovery to go well.
“Finally we are going home. Thank you all for everything,” Sarah said. Nathan completed his medication, and so he was discharged from the hospital this morning. We will see him again next year for review. We give God the glory!
“Nathan will be taking his last dose of antibiotics today at midnight. This morning the doctor told me that we will be discharged tomorrow, and that I keep monitoring his head from home. I am not comfortable monitoring him from home. I prefer to do it from here, but I will follow the doctors orders,” said Sarah. He is very lively and active, though. When Sarah went to have her lunch, she was with him, and he was playing on her lap. Let us be praying that his head doesn’t increase in size.
“His treatment will get done tomorrow, and he may be discharged on Thursday. He has started to play and is becoming more and more active. Am excited about that,” Sarah said. She has also noticed that his legs can now move a bit. He can try to support his body when she lifts him up on his feet. Sarah called her family back at home, and she was able to speak to Destiny, her firstborn. He is fine, but is missing her and Nathan. Please continue to pray with them!
Nathan is nearing the end of his antibiotics, and he and Sarah will go home for sometime Dr. Peter said this morning. Sarah and Nathan are both doing well. Sarah continues to see improvement in her son. Nathan received several more get-well messages today which were an encouragement to them. Please continue to pray for Nathan that he will grow up well!
“It is our prayer to be home at Christmas time,” said Sarah. This morning Sarah spoke with her son Destiny who is four and half years old he says he is doing well. After the call, Nathan had his first session of physical therapy which he was unhappy about cried through. Sam taught Sarah different exercises that she can be doing now to help him as he grows up. “He was teaching how to stretch his legs out so the baby is not bent,” said Sarah. Nathan will have a CSF tap tests today and they will then be run to determine if he still has an infection. Please be praying for Nathan that he will soon be healed and for them to be able to go home soon.
“He is growing. Even though he is sick, he is lively,” said Sarah. Today marks eight days on antibiotics for Nathan. He has another six days before completing his regiment, and his doctors continue to discuss possible options for him. Sarah has been holding Nathan a lot - he likes falling asleep in her arms! When he is awake, Sarah does exercises with him. “He is gaining strength in the legs because of the exercises,” said Sarah. This afternoon Nathan and Sarah received a get-well message from a woman with spina bifida, which was a big encouragement to Sarah. This afternoon there was a talk on spina bifida. Sarah was able to listen from her bed while Nathan was getting his IV antibiotics. Please keep to pray for Nathan that he will continue to improve!
“We are still around on treatment,” said Sarah. Nathan continues to be on antibiotics as he awaits a possible shunt placement. His doctors are still making a plan for his possible operation. Yesterday, Ambrose came to the hospital so Sarah could leave and go to a dentist to get a tooth that was causing her pain pulled out. The tooth was pulled successfully, however, she is still in pain, Ambrose made it back home safely. Please continue to pray for Nathan and his doctors as they make a plan!
“I'm fine. Nathan is fine, very fine and lively,” said Sarah. She is doing much better than yesterday. She has been reading 1 Samuel in her Bible and was visited by Immaculate from the spiritual center who prayed for Nathan. Sarah and Nathan received a handful of get-well messages today which were a big encouragement to them. Samuel is still receiving antibiotics while the surgical team makes a plan for him. Please continue to pray for Sarah and Nathan that he will be able to grow up healthy.
“He is fine, but unfortunately I was told the surgery was not successful and he will need another operation. I am worried. I don’t know how the shunt will be. My weekend was not good. I was worried about Nathan. The dad got worried when I told him about the shunt. He is very worried. God be with Nathan because I can no longer handle it as a mother I have done my part took him to the hospital, but we keep getting defeated. I want my baby fine. I want all the baby’s functions working,” said Sarah. Over the weekend, the pressure in Nathan’s head increased, so they decompressed his head by removing cerebrospinal fluid, he is currently on antibiotics. Once the regiment is complete, he will be able to have surgery. Please be praying for comfort for Sarah and for Nathan that the shunt will be successful, and for him to be able to grow up healthy!
“I’m fine. Yesterday I was not but I”m fine now. Yesterday Dr. Noah drained water and it showed no growth,” said Sarah. The news that Nathan doesn’t have a growth in his cerebrospinal fluid has encouraged Sarah, and so has Nathan’s increased energy, ”He has gained strength in his legs,” said Sarah. Please join Sarah in praying for Nathan, “I want him to move and talk and in the future to have a wife,” she said.
“I’m discouraged. I’m not convinced of the surgery. Let me wait and see what will happened let me wait. If the operation was successful the head will not swell if not successful it will swell,” said Sarah. Sarah is worried that yesterday’s operation will fail and Nathan will need another operation. She is also worried about a growth in the cerebrospinal fluid, which has resulted in Nathan being placed on antibiotics. She has also brought up concerns about Nathan as he grows up what he will be able to do. Dr. Peter and Dr. Justin said they would meet with Sarah to answer all her questions. Immaculate shared a story of encouragement with Sarah and Esther whose son Ednan was next to Nathan in the ICU. Please pray for Nathan that he will not need another operation, and that he will grow up well and for strength for Sarah.
“He is going for surgery today. I am not worried I am strong I know he will be out,” said Sarah. Nathan had an ETV/CPC performed by Dr. Kerry and Dr. Justin. The surgery was successful! Nathan will soon be transferred to the ICU where he will spend the night. Please be praying for Nathan to recover swiftly from his operation.
“Nathan is fine. He had a peaceful night, and he is still waiting for surgery- maybe tomorrow,” said Sarah. Sarah called Ambrose and told him Nathan might have surgery tomorrow or Thursday. He wants to come to CURE, but Sarah told him, “Right now, I’m strong,” and to stay at home because it is far and expensive to travel from their home to CURE. Nathan and Sarah sat outside the ICU and enjoyed the morning sun, until it got too hot for Nathan, and they went to the ward. Please keep Nathan and Sarah in your prayers that the upcoming operation will be a success and for continued strength for Sarah!
“Nathan is here awaiting surgery,” said Sarah. Nathan has had a CT-scan done and his cerebrospinal fluid (CSF) tested. He is now awaiting surgery, and he will most likely go into surgery this week. This morning Nathan and Sarah sat on their bed at the ward with Sarah’s Bible next to them. “I have to read, He is the one who will rescue us, our questions are answered in the Bible,” said Sarah. Over the weekend she was reading from the New Testament. “Paul was telling the Thessalonians' God loves you. I was like Nathan God loves you I transferred it to Nathan,” said Sarah.
“I am praying for general healing of Nathan from head to toe. He has had many injections all over his body and I want that to end,” said Sarah. When Sarah left CURE Hospital after her first discharge she found a warm welcome at home. Her neighbors have been visiting Nathan and are very supportive. Although they didn’t know about hydrocephalus, Sarah has been educating them about it. Nathan once lost a lot of weight and Sarah says she lost hope thinking that she was going to lose him, but her husband was very supportive. About her husband, Sarah said, “He has been very courageous and when he notices that I am feeling sad he encourages me and tells me that the baby will be fine.” Ever since she was discharged, Sarah has been monitoring Nathan’s head circumference. However, last week she noticed that it had increased so she didn’t waste anytime to come back to CURE Hospital.
“I am praying for general healing of Nathan from head to toe. He has had many injections all over his body and I want that to end”, said Sarah. When Sarah left CURE Hospital after her first discharge she found a warm welcome at home. Her neighbors have been visiting Nathan and are very supportive. Although they didn’t know about hydrocephalus, Sarah has been educating them about it. Nathan once lost a lot of weight and Sarah said she lost hope thinking that she was going to lose him but her husband was very supportive. About her husband, Sarah said, “He has been very courageous and when he notices that I am feeling sad he encourages me and tells me that the baby will be fine.” Ever since she was discharged, Sarah has been monitoring Nathan’s head circumference. However, last week she noticed that it had increased so she didn’t waste anytime to come back to CURE Hospital.
“He is doing well, he is fine,” said Sarah. This morning Nathan was discharged home, which Sarah had mixed feelings about. She is worried he will get sick again. She is considering traveling back to CURE, which is a four to six hour bus ride for Nathan to get his stitches removed from here because she trusts CURE more than any other hospital. Yesterday there was a pastor conference at the hospital, and Sarah listened to one sermon after people from the conference talked with her by her bed. Please be praying for Nathan to not develop hydrocephalus and for his back to heal well!
“Nathan is fine they removed the dressing. They said, if all goes well we may be discharged tomorrow. I just want to stay till he is fine, I’m scared of this head issue,” said Sarah. This morning during ward rounds Dr. Peter removed Nathan’s dressing and once the doctors moved to the next bed, Sarah eagerly looked at Nathan’s back. “I thought my boy would die that I would not get treatment for the boy and he would die in a few days, but no. I didn’t know my baby would be like this, now I’m very happy,” said Sarah. Please be praying for Nathan that he will not develop hydrocephalus and that his back will heal well.
“I am okay. Nathan is fine,” said Sarah as she sat by Nathan in the ICU. He was not feeding yesterday, so they placed an NG tube and kept him in the ICU for an additional day. “He can now feed. At first, I was scared of (NG tube), but it is helping him. Since that time, he is fine,” said Sarah. Sarah had a good day yesterday, and she enjoyed having Ambrose around. However, he had to return home. She was unable to attend the mother’s chapel time because she was in the ICU with Nathan but she has been praying. “I am praying for life for my boy and praying so hard for the head not to swell and for the legs to be okay,” said Sarah. Please join Sarah in praying for Nathan that he will not develop hydrocephalus.
“Here is Nathan. Nathan will finally be fine! I am happy and I am relieved,” said Sarah. Nathan spent the night in the ICU recovering from his operation. His doctors have no major concerns, so they are transferring him back to the ward. Ambrose spent the night and has been helping Sarah do laundry and take care of Nathan. Please continue to pray for Nathan to recover from his surgery!
“My husband knows that Nathan is having surgery today and he will be here anytime," Sarah said. This morning she attended the devotion at the hospital chapel and enjoyed the praise and worship. Nathan is currently in surgery for a myelomeningocele closure. Please join them in praying for him!
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