KLOVE Recent Patient Updates
Activity for the week of Sunday, Aug 21
We we're surprised to see Kevin's leg wrapped in a cast this morning! Without the rod, his leg is a little weak and will need some support as it heals. A leg brace would've been fine, but it wouldn't stay in an active 8-year-old boy's leg who loves to stroll around the hospital! No worries, the cast won't go home with him, it'll come off just before he gets discharged as long as he promises to keep his leg brace with him!
Edina's gotten the bill of good health from the doctor and is headed home today! She stopped by physiotherapy for some last minute instructions. Please pray that her mom keeps up with cleaning her frame, she'll be back in November for another checkup!
Kevin was hanging out with Decia this morning in her room, the pair was playing together with Play Doh. We knew he’d be a little sore, but his biggest complaint was that he had a stomach ache, not really what we were expecting to hear! After some medicine, he was feeling better and back to his cheery self. As far as his legs go, they’re doing OK, and will only get better!
Edina is super enjoying the playground on this lovely sunny afternoon! The kids were out for an hour or so playing football (soccer), swinging, and playing in the 'ambulance'! It's no wonder that her frame gets dirty with all her running about when she's outside! It will be good practice for her mom to clean the frame later!
A few kids went in for surgery today, so there is a lot of crying going on in the ward. This is making Chakupaleza a little upset and he has spent most of the afternoon fussy and joining in the crying chorus. Our nurses are trying all they can to make him happy and comfortable. His legs are doing well and his mom says he managed to get a good night's sleep yesterday, we are thankful for that!
Keya surprised us today and came for a brace fitting! This guy is a serious smiler. Almost every time we look at him, he cracks a huge smile! We got to spend some time with him and his caretaker while they waited for Keya’s braces to be sized properly. His caretaker - a volunteer who works for a charity that supports children’s surgeries - reflected on how far Keya has come. She talked of how he used to sit and scoot to move around. Now look at him! He walks with just a cane! And he’s got braces again to help straighten his feet. He will have to get new shoes to fit the braces, but then hopefully he’ll be good to go. We are so thankful for all of God’s healing that has taken place in this child. We are also thankful for his caretaker who so faithfully loves and cares for him each time she brings him from his school to CURE!
Kevin is back! He came in with older sister Decia who had surgery today, but it was for more than just moral support. Kevin had the rods removed from his upper legs today, and yesterday told Decia that he knew she could handle the pain. He was a little nervous at first about his own ability to deal with it, having flashbacks of his last time in the operating room, but woke up nearly pain free and relieved to be done in there for a while. Please keep praying for him and his family!
Fatima came in for her checkup today! She's doing well but will need to get an AFO - ankle foot orthotic. It was a bit disheartening for her to hear since they won't be able to get her to Lilongwe to get the AFO until November. Fortunately, she doesn't have to have another plaster - the physiotherapists found a special boot to keep her foot straight until November. It's been super busy today so we didn't have time to read all her get well messages, (no one managed to upload a video unfortunately, although you sent awesome messages in response) but we'll try to get them to her at her next follow up!
Guess who's finally back for his pelvic support osteotomy! Thom is back in the hospital and will have his operation later this week, probably Wednesday. He also finally has an after xray shot if you want to check it out! Because the ball of his hip gone, the doctors will manufacture a sort of 'platform' by cutting the femur. This will unfortunately shorten the leg so he will need a frame to support the bone while it heals and also lengthen it! Please be praying for him as he'll be around for quite a while coming in for physiotherapy afterwards!
Edina's doing well today, and here's a photo of her with CUREkids Coordinator Avanell! Another kid with pseudoarthrosis, Mustafa, took the photo! Mustafa has discovered that if he asks nicely if he can take a photo of CUREkids Coordinator Avanell with her camera, sometimes she will say yes! He actually takes pretty good photos!
Dr. James says Edina is fine and stressed that it's pretty normal for kids with long term frames like Edina's to get pin site infections. He's having the nurses teach her mom how to wash the frame every day and will send her home with antibiotics in case it happens again so she doesn't have to travel so far. Please pray that her mom learns how to keep the frame squeaky clean - no small task when you're living in a dusty village setting!
It's 'bye for now' to Ireen! She was discharged from the hospital this weekend with casts on both of her feet so that she can heal from home. She left in very good shape and on crutches. We will miss Ireen because she has become part of our CURE family! Please keep praying for a complete recovery!
How often is one given the opportunity to sing in front of an awesome artist? Ireen was excited today because she got to perform in front of gospel sensation and friend of CURE, Lauren Daigle. She even had back up dancers and the whole crowd was up on their feet marveling at this gifted girl with a heart of gold! Lauren was also blessed to be a part of this joyous celebration. What a great way to end the week!
We got to see Keya today! This fun, smiling boy was here for a checkup. The word from the doc is that Keya needs braces again for his feet. His feet need the correction that braces bring. The issue with his spine is something that they will leave for now. Let’s pray that the issue goes away without any need for treatment! We are looking forward to seeing him next time!
Edina's chilling with her mom, waiting to go in for some pin site dressings. It's quite painful so please be praying for her! Dr. Lubega wants Dr. James to see her on Monday before she gets discharged, but it looks like she may get to go home after he checks her frame out! Dr. James has been away on vacation and we're excited for him to be back!
"How can I even begin to praise God for what he has done for us?" Those are the words that Ireen said to us as she reminisced about her journey thus far and where she has come from. We had a beautiful time looking at all her old pictures and seeing her progress. Ireen is doing so well. We had an opportunity to talk to her doctor as well and discuss Ireen's progress. When Ireen first came to CURE, she had a sore on her right foot and that is the foot the doctor started surgery on. The sore was deeper than it appeared and this had greatly affected her foot. At one point, it got so bad that there was fear she would lose her leg. Not one to give up, Dr. Moyo worked hard to ensure that her foot was being treated properly and that she had constant wound dressings. His hard work paid off and he was able to get work done on the second foot as well. Now Ireen can stand and walk. She told us of how she got bullied in school because of her disability. Ireen says she pushed herself to do everything that the other kids could do so their words would not hurt. She turns 18 next week and she says she is in the right place right now because God has firmly put her feet on the ground! Join us in praising God for that!
Emmy is going home! We are praying that her leg continues to heal and are so glad that she was able to come back to us. Today, she was given a balloon and got to play with her friends and the balloon. Emmy has had to spend so much time with us over the years. We are so hoping that she leaves each time with good memories from her time at CURE! We are looking forward to seeing her on September 28th for her checkup.
Edina's having fun playing with a glove 'balloon' with her mom! The kids have discovered that the latex gloves make awesome balloons and have been playing with them all day! CUREkids Coordinator Thandy talked to her today and she said that she's doing good except the turns hurt when they do them. He found her at lunch and told her she should eat her vegetables, to which she responded, "Noooo!" "Don't worry, I won't call you a rabbit!"
Josephy had his tenotomy today! Dr. Maina gave him a little local anesthetic with a needle and then took a sterile blade and gave the tendons a little nick through the skin to make them longer. Poor Chikondi looked away while Dr. Maina was doing it, and we don't blame her! Josephy was a bit fussy but soon quieted down and seems none the worse for wear. He will have to wear these casts for three weeks and then he will have to wear a special pair of shoes afterwards, we'll see him next on September 8th!
Activity for the week of Sunday, Aug 21
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Why I Support CURE
Chris is excited to join CURE for the same reason most of us are part of it: Seeing the Kingdom of God at work in kids lives. "Kids right now who can't walk, they're being carried, who can't go outside because their faces look different… they get to be kids again. Because of CURE… because of you and me and everyone else involved, kids will be kids again, and be able to walk and run.Chris Tomlin