KLOVE Recent Patient Updates
Activity for the week of Sunday, May 22
Eda's ultrasound looks okay, and the doctors at Queens gave her the okay, but our doctors are still going to need to check out her blood work and xrays! We're going to be dressing her wounds regularly and we'll let you know more when we know! Fortunately she seems to be enjoying herself playing Bao with Idrissa!
Chikizani is being so adorable and friendly today! He had a great weekend and his leg did not bother him that much. We are waiting to find out whether the doctor will discharge him from our ward. We are curious to know how long he will stay in the hospital because he came with a caretaker who is looking after all the other Cheshire kids. We will know by tomorrow whether he will be admitted or whether he can go home with the rest of his friends!
Margaret is back! She has Osteogenesis Imperfecta, a condition commonly known as brittle bone disease, which makes her bones, well, brittle. This is what caused her knock-knee in the first place. Most kids with OI need rush rods in each of their leg bones to keep them straight, but unfortunately when they grow, the rush rod becomes too short so they need to be replaced. Margaret just had another operation to replace the rush rod in her left tibia which had become too short and was protruding. We'll post photos of her surgery tomorrow! We're so excited to have her back!
Eda's back, unexpectedly! Her leg is a bit swollen and her wound has some pus so she came back in to make sure that everything's alright. We're running a bunch of blood work, xrays and tests and also sent her to Queens earlier this afternoon so that they could check her out as well. We'll let you know on Monday what we find out, but please be praying that it's a minor issue! We're so glad to see her beautiful face again though!
Brenda came in for a wound check and more therapy today! She really wasn't enjoying it - poor kid was screaming in the physio department today. Unfortunately, she really needs to do the painful exercises with her arm or it will re-contract. Please be praying for her!
Edina is still set to go to Feed the Children, but at the moment, she's enjoying teatime in the kitchen! Cute kid! She'll probably disappear to FTC over the weekend and then we'll see her in about ten days for her strut change before she can go home! We're going to miss her sweet smile - and then the way she giggles and hides her face in her hands when she sees the photo of herself!
Look who’s back! Wincess came back for a follow up, and managed to score two lollipops. We think Dr. Reyes just couldn’t say no to that sweet face! She has grown so much since we last saw her, but unfortunately, her one leg still turns out when she stands and walks. An x-ray showed that her hips are perfect, which is what her last surgery corrected, but her knee is the culprit, and so she will need to have knee surgery soon. Please pray for the family, this has been such a long road, but we know God is in control of Wincess’ life!
Chilizani went for surgery and his feet have been casted again for a few weeks. It went well, though he is in pain now and he has not said much today while he recovers. We told the doctor about his bad habit of using his knees to walk and this has greatly impacted his healing speed. Problem solved though, the casts go above his knees so he will not be able to bend and walk on his knees for now! Please keep him in your prayers!
Edina's going to Feed The Children for a couple weeks! FTC is a local shelter with a building we rent for long term stays or for when the ward is a bit too full! Edina needs to have a strut change in a couple weeks, but it's too far for her to go all the way home and then come back, that's why we need to keep her nearby for a while!
This was the scene today during Quinter’s great report. “Wow, very good,” Dr. Theuri said after looking at her X-ray. The bones have healed well. She’ll have her pins removed today and go home without a cast! She can walk using crutches and will come back in July for another review. We thank God that Quinter and her Mom both left smiling today!
Chilizani is back, with no casts! However, he still has the bad habit of walking on his knees and not his feet. He is touring the hospital like that and it is making us cringe a little bit because we do not want him to get used to not using his legs! We are waiting for his doctor to see him later today and decide whether he needs surgery tomorrow or not. On a happy note, his feet look much better than when we first met him and he is so happy about it!
If you’ve been following Emmy for a while, you know that she rarely smiles. So today, in the busy clinic of Litein, her Dad did all he could to get one out of her. This is the closest he came! Still, we had a good time coloring on stickers and keeping her busy while she waited to be seen. They were told to get a night splint fitted to help keep her leg straight while she’s sleeping. “But the physiotherapy is most important,” Dr. Nyambati emphasized. Let’s keep praying for Emmy and her Dad as they continue the stretches at home in hopes to eventually get a prosthesis. We’ll see them again in Litein, July 18th.
“Jesse is fairing well, these days he tries to sit and he can turn in his own in bed,” said Dillis. When our doctors examined him, they found that his shunt is functioning well and his head circumference is normal for his age. We hope he continues to thrive!
“I don't know what to say, I am just happy that Frank is now healed and, by the way, there is nothing that he doesn't know, he is too smart!” said Emmanuel, Frank's father. Frank talks a lot and he is in good shape, in fact, his father is planning to enroll him into school soon! We are thankful to God for the good things happening to Frank.
Prisca was brought for review at our satellite clinic! She still looks fine with no need for immediate surgery! According to Esther, baby Prisca has even learned how to crawl and feed herself. We tasked a social worker from her village to be monitoring her as her case will be reviewed by the surgeon back at CURE for discussion. We’ll give the details when we have them!
Dr. James was marking Edina's frame struts today to make it easier for her mom to learn how to do the turns on her frame. Because she'll have the frame on for so long, her mom, Gladys, needs to learn how to do it. Fortunately, her mom has already learned how to clean it so now she just needs to master the turns and then they can go home! Please be praying for Gladys and Edina!
Activity for the week of Sunday, May 22
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Chris is excited to join CURE for the same reason most of us are part of it: Seeing the Kingdom of God at work in kids lives. "Kids right now who can't walk, they're being carried, who can't go outside because their faces look different… they get to be kids again. Because of CURE… because of you and me and everyone else involved, kids will be kids again, and be able to walk and run.Chris Tomlin