Centennial Baptist Recent Patient Updates
Activity for the week of Sunday, Aug 28
Keya surprised us today and came for a brace fitting! This guy is a serious smiler. Almost every time we look at him, he cracks a huge smile! We got to spend some time with him and his caretaker while they waited for Keya’s braces to be sized properly. His caretaker - a volunteer who works for a charity that supports children’s surgeries - reflected on how far Keya has come. She talked of how he used to sit and scoot to move around. Now look at him! He walks with just a cane! And he’s got braces again to help straighten his feet. He will have to get new shoes to fit the braces, but then hopefully he’ll be good to go. We are so thankful for all of God’s healing that has taken place in this child. We are also thankful for his caretaker who so faithfully loves and cares for him each time she brings him from his school to CURE!
We got to see Keya today! This fun, smiling boy was here for a checkup. The word from the doc is that Keya needs braces again for his feet. His feet need the correction that braces bring. The issue with his spine is something that they will leave for now. Let’s pray that the issue goes away without any need for treatment! We are looking forward to seeing him next time!
J-vie made a "better safe than sorry" decision as he came in to clinic today. We weren't expecting him to see so soon, but he felt a slight pain in his leg and wanted to make sure that everything was OK. After checking his X-ray, it looks like everything is still in tact and there's nothing that he should worry about. We're glad that he came by to visit though and we heard all about his adjustment in school and the new friends that he's made so far! Plus, he got a surprise present from Switchfoot's band member Chad and felt very special to receive a pair of drumsticks that he owned personally!
“Myres is completely fine now so I think we can close his medical file. He is very healthy and normal and loves watching cartoons so much. He can turn the TV and Radio and search for a channel that he is interested in,” said Sesanga, Myres’ father. Myres was too shy to speak to us, but we later caught him asking his father for a biscuit. We thank God for healing him!
Lonjezo gets to go home today! We caught a photo of her lying on the plaster room table while she got her cast completed before she left! We're going to miss her sweet smile! With this rod both of her legs should be straight and all set for walking, she won't need any more operations in the near future. She will eventually need to have longer rush rods put in her bones, but hopefully not for a couple years! She'll be in September 12th for a checkup here at CURE Malawi so we can see how she's doing!
Lonjezo looked like she was crying when we walked up to her today, but when she saw the camera she immediately grinned for a photo, so we're not sure if she's in pain from her operation or if her eyes are just watering since our translator is on vacation this week! Either way please be praying for her as she recovers! Dr. Lubega straightened her tibia yesterday, cutting a wedge out of the bone to make it straight and then using a rod and plate to hold it in place as well as strengthen it since her bones are brittle.
Lonjezo is waiting for a blood test to make sure she's all set for surgery before she goes in. It's taking a while so other kids have gone in before her. Please be praying she comes back with a high HB count and no malaria so she can go for her surgery later today. We'll (hopefully) post details and photos tomorrow of her operation!
When Eliud didn't show up last week we were really hoping that he would show up this week , and he did! He was, as always, in the company of his mother. Today he had X-ray scans of his leg taken and he is doing great. The doctor reminded his mother that the condition could recur and that is why we need him to keep coming for follow ups until he is the age of 15, when his bones stop growing. He is also enjoying school and told us that in the last exam he was position 21 and is he working hard to improve. We look forward to seeing him again in six months time. Please keep praying for more good reports!
We brought Lonjezo some get-well messages today while she was finishing up her lunch and her mom was in the bath. She said to tell you that, "I'm good!" She told Lawrence, "ask her [Avanell] to take a picture of me with my Nsima and send it to them." So here's a photo of Lawrence, Lonjezo, and Nsima for you! Nsima is a staple dish here, thick maize flour paste, which you eat with sauce and veggies.
Guess who's back! Lonjezo is here for another operation! Part of the issue with Osteogenesis Imperfecta or brittle bones is that it continues to come back - having brittle bones means a multitude of tiny (and sometimes large) fractures build up over time, bending the bones, especially the weight bearing leg bones. We can stabilize the bones with metal rush rods, but when the child outgrows them, they need to be replaced. The doctors are going to xray all of Lonjezo's leg bones to see which ones are causing the most trouble and need to be dealt with first, and afterwards they'll plan for another operation. Please be praying for her!
Kaye has a really cool, new walking stick, and not just that, after two years of faithfully wearing his foot braces, he can now finally breathe a sigh of relief! He doesn't need to wear them anymore! The doctor after reviewing him, told him that his feet are now fully corrected. A reason to praise God! Apart from the the good news, Kaye has also started developing some back complications, so Dr. Mbugua requested him come to Kijabe soon for some scans and more consultations on the way forward. As we thank God for his healed feet, let's remember to pray for the spine complication.
Quinter passed by clinic today on her way to school. We missed a photo opportunity with our sweet friend but, we are happy to report that she is doing very well and her legs are looking good and she is ambulating on crutches! Her next appointment is on the 17th of January next year. We pray that she will be doing even better then and God willing will make sure to post a photo to show you how good she is doing!
We haven’t seen or heard from Milton in a long time, so today we called up his mom to follow-up. She was happy to hear from us, and gave us a great report! Milton is a Junior in high school now and doing so well walking! They came in 2015 to have a prothesis repaired and have no complaints now. We told her about our next clinic in Thika in September and she said they will come for review and so we can see him. We cannot wait!
It's always good to see a patient so faithfully coming for follow up. And of late, Christopher and his father have been very good at that. This boy really does love to play, from the minute they arrived to the time they left, he was ready and willing to join in any activity around him that seemed like fun! He colored, chased other kids around and played a lot of other games! He is making some slow but good progress with the exercises his dad is helping with at home and the doctors encouraged him to continue with those exercises. It was a good day for Christopher and we look forward to seeing him again on our next visit to Embu on September 15th.
We see J-Vie hanging out at the hospital on a fairly regular basis, but today was more than a social call, he had a follow up with Dr. Tim. Since today is Dr. Tim’s last day in the Philippines for a few months, he wanted to get one more check squeezed in. Everything is still healing well, and J-Vie will be back in December to have the rods removed from his legs, so he'll have plenty of time to recover before Night to Shine! But, we know we’ll see him hanging in the playroom long before then!
Sirguit is feeling proud of her self today! Our doctors told her she did a very great job taking care of her frame and that she is a good example for the other kids who are learning to do the same thing with their frames. She is doing very well and we will see her again in five weeks!
Tola came with his father for his follow-up, he is in good spirits and his left leg is healing well! He still needs another procedure done on his right leg, so he is scheduled to come back in August for that operation. Please keep him in your prayers!
Ezra showed up today! He went to get his braces re-fitted, but cried through the whole thing. We thought he was in pain, but the physiotherapist just chuckled. “No, he is just fearing, there is no pain.” We hope Ezra gets used to the process of getting braces fitted, because he’s not done growing. For now though, he has new braces that fit and has been sent home! We won’t need to see him until November for review. We are thankful for a good report!
This was the scene today during Quinter’s great report. “Wow, very good,” Dr. Theuri said after looking at her X-ray. The bones have healed well. She’ll have her pins removed today and go home without a cast! She can walk using crutches and will come back in July for another review. We thank God that Quinter and her Mom both left smiling today!
Activity for the week of Sunday, Aug 28
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Chris is excited to join CURE for the same reason most of us are part of it: Seeing the Kingdom of God at work in kids lives. "Kids right now who can't walk, they're being carried, who can't go outside because their faces look different… they get to be kids again. Because of CURE… because of you and me and everyone else involved, kids will be kids again, and be able to walk and run.Chris Tomlin