Centennial Baptist Recent Patient Updates
Activity for the week of Sunday, Oct 23
Today was Keya's last day in school. When his dad picked him up from school, they passed by clinic to get his braces fixed.This very playful boy is already having trouble with his braces and we're guessing it comes from a lot of play at school. His brace straps were broken and needed fixing. As always, he had his cane with him and that constant smile was still on his face. We also learned that, when they visited the hospital in August, he had his spine checked and he was told that it's not something to worry about at the moment. Our doctors will however keep observing him for the next three years or so in case anything changes. We see him again next year in May when he comes back for another review.
Lonjezo is back for another appointment! Because of her brittle bones, she has another fracture in her left leg, so Rehab Tech Patrick sent her for an xray and a checkup from the doctors. The xray looks like she's healing well, but she'll be back for another review January 16th. Please keep her in your prayers!
"Very good alignment of both knees." That was Dr. Theuri's comment to Josephine when they came for review today. This lovely girl is doing great, she is getting taller by the months but she still carries that shy smile with her! She also is doing great in school. Today she was in the company her mother and the two were looking good with marching pink dresses! Let's keep praying for good reports for our lovely friend. We see her again in a year's time.
“This place is too cold,” said Frank about his time in the CT scan room. He had to get scanned before being discharged. Frank will be heading home today, we will see them again at our Lira clinic in the middle of November. Please keep Frank in your prayers, that he will have a full recovery and continue to grow up healthy and strong!
“Everyday I wake up early in the morning and do those stretching exercises that I was shown here before he goes to school. And I think I’m seeing some changes, he is improving,” Christopher’s father told us today when he brought him for clinic. Our physiotherapist took his father through the exercises again, explaining why each was needed, just to make sure he is doing the right the thing. Dr. Nyambati, after review, told him that with those exercises, he is bound to get better with time. Keep praying for this young boy, that he will keep getting better and better. We see him again in six months when he comes for his next appointment!
“I want to remove these wires (connecting him to the monitor in ICU) today, I haven’t talked to my mom,” said Frank. He did however tell us that he is doing well and his nurse Alfred agrees. We expect him to be transferred back to the general ward anytime today. We thank God for how far he has brought Frank.
Frank is currently in surgery, they are performing a burr hole and an evacuation of the subdural. He received a couple of get well messages prior to going into surgery and that was encouraging to him. Once the operation is finished, he will wake up in the PACU then be transferred to the ICU where he will spend the night. Please continue to pray for Frank, that he has a full recovery.
Frank is having a good day! He has met several visitors who gave him candy which he has been enjoying, he also received an inflated glove to play with. Annette is also doing well though she is worried about his upcoming operation. This morning she was told he would need another surgery. Please continue to pray for Frank, that his operation will go well and for strength for Annette.
Lonjezo came in for a follow up appointment and some physiotherapy with the new rehab tech Diana! Lonjezo is doing well, she just had her cast off but can already stand and bend. Ndapile, a physiotherapist, was impressed by how strong she is! We'll see Lonjezo again on October 24th for another checkup!
Frank returned to CURE on Sunday because they missed the Lira clinic where he had a follow up appointment and he has been squinting recently and limping. Yesterday labs were run and they came back good, today a CT scan was done which showed a subdural collection of blood. His doctors will investigate his history further, this afternoon his scans will be shown to the surgeons and they determine a plan. Annette says, he has been doing well, walking and talking. Frank has spent the day playing with his mother and greeting the staff with smiles, waves and handshakes. Please pray for Frank, that a plan will be made and he will continue to grow up well.
Sirgut's operation was cancelled for today. Our doctors wanted to keep her on the frame for the next six weeks because her bone still needs more time to be strengthened for her to walk on them. We will see her in October, please keep her in your prayers!
Keya surprised us today and came for a brace fitting! This guy is a serious smiler. Almost every time we look at him, he cracks a huge smile! We got to spend some time with him and his caretaker while they waited for Keya’s braces to be sized properly. His caretaker - a volunteer who works for a charity that supports children’s surgeries - reflected on how far Keya has come. She talked of how he used to sit and scoot to move around. Now look at him! He walks with just a cane! And he’s got braces again to help straighten his feet. He will have to get new shoes to fit the braces, but then hopefully he’ll be good to go. We are so thankful for all of God’s healing that has taken place in this child. We are also thankful for his caretaker who so faithfully loves and cares for him each time she brings him from his school to CURE!
We got to see Keya today! This fun, smiling boy was here for a checkup. The word from the doc is that Keya needs braces again for his feet. His feet need the correction that braces bring. The issue with his spine is something that they will leave for now. Let’s pray that the issue goes away without any need for treatment! We are looking forward to seeing him next time!
J-vie made a "better safe than sorry" decision as he came in to clinic today. We weren't expecting him to see so soon, but he felt a slight pain in his leg and wanted to make sure that everything was OK. After checking his X-ray, it looks like everything is still in tact and there's nothing that he should worry about. We're glad that he came by to visit though and we heard all about his adjustment in school and the new friends that he's made so far! Plus, he got a surprise present from Switchfoot's band member Chad and felt very special to receive a pair of drumsticks that he owned personally!
“Myres is completely fine now so I think we can close his medical file. He is very healthy and normal and loves watching cartoons so much. He can turn the TV and Radio and search for a channel that he is interested in,” said Sesanga, Myres’ father. Myres was too shy to speak to us, but we later caught him asking his father for a biscuit. We thank God for healing him!
Lonjezo gets to go home today! We caught a photo of her lying on the plaster room table while she got her cast completed before she left! We're going to miss her sweet smile! With this rod both of her legs should be straight and all set for walking, she won't need any more operations in the near future. She will eventually need to have longer rush rods put in her bones, but hopefully not for a couple years! She'll be in September 12th for a checkup here at CURE Malawi so we can see how she's doing!
Lonjezo looked like she was crying when we walked up to her today, but when she saw the camera she immediately grinned for a photo, so we're not sure if she's in pain from her operation or if her eyes are just watering since our translator is on vacation this week! Either way please be praying for her as she recovers! Dr. Lubega straightened her tibia yesterday, cutting a wedge out of the bone to make it straight and then using a rod and plate to hold it in place as well as strengthen it since her bones are brittle.
Lonjezo is waiting for a blood test to make sure she's all set for surgery before she goes in. It's taking a while so other kids have gone in before her. Please be praying she comes back with a high HB count and no malaria so she can go for her surgery later today. We'll (hopefully) post details and photos tomorrow of her operation!
When Eliud didn't show up last week we were really hoping that he would show up this week , and he did! He was, as always, in the company of his mother. Today he had X-ray scans of his leg taken and he is doing great. The doctor reminded his mother that the condition could recur and that is why we need him to keep coming for follow ups until he is the age of 15, when his bones stop growing. He is also enjoying school and told us that in the last exam he was position 21 and is he working hard to improve. We look forward to seeing him again in six months time. Please keep praying for more good reports!
We brought Lonjezo some get-well messages today while she was finishing up her lunch and her mom was in the bath. She said to tell you that, "I'm good!" She told Lawrence, "ask her [Avanell] to take a picture of me with my Nsima and send it to them." So here's a photo of Lawrence, Lonjezo, and Nsima for you! Nsima is a staple dish here, thick maize flour paste, which you eat with sauce and veggies.
Guess who's back! Lonjezo is here for another operation! Part of the issue with Osteogenesis Imperfecta or brittle bones is that it continues to come back - having brittle bones means a multitude of tiny (and sometimes large) fractures build up over time, bending the bones, especially the weight bearing leg bones. We can stabilize the bones with metal rush rods, but when the child outgrows them, they need to be replaced. The doctors are going to xray all of Lonjezo's leg bones to see which ones are causing the most trouble and need to be dealt with first, and afterwards they'll plan for another operation. Please be praying for her!
Activity for the week of Sunday, Oct 23
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Why I Support CURE
Chris is excited to join CURE for the same reason most of us are part of it: Seeing the Kingdom of God at work in kids lives. "Kids right now who can't walk, they're being carried, who can't go outside because their faces look different… they get to be kids again. Because of CURE… because of you and me and everyone else involved, kids will be kids again, and be able to walk and run.Chris Tomlin