Centennial Baptist Recent Patient Updates
Activity for the week of Sunday, Jul 24
Lonjezo looked like she was crying when we walked up to her today, but when she saw the camera she immediately grinned for a photo, so we're not sure if she's in pain from her operation or if her eyes are just watering since our translator is on vacation this week! Either way please be praying for her as she recovers! Dr. Lubega straightened her tibia yesterday, cutting a wedge out of the bone to make it straight and then using a rod and plate to hold it in place as well as strengthen it since her bones are brittle.
Lonjezo is waiting for a blood test to make sure she's all set for surgery before she goes in. It's taking a while so other kids have gone in before her. Please be praying she comes back with a high HB count and no malaria so she can go for her surgery later today. We'll (hopefully) post details and photos tomorrow of her operation!
When Eliud didn't show up last week we were really hoping that he would show up this week , and he did! He was, as always, in the company of his mother. Today he had X-ray scans of his leg taken and he is doing great. The doctor reminded his mother that the condition could recur and that is why we need him to keep coming for follow ups until he is the age of 15, when his bones stop growing. He is also enjoying school and told us that in the last exam he was position 21 and is he working hard to improve. We look forward to seeing him again in six months time. Please keep praying for more good reports!
We brought Lonjezo some get-well messages today while she was finishing up her lunch and her mom was in the bath. She said to tell you that, "I'm good!" She told Lawrence, "ask her [Avanell] to take a picture of me with my Nsima and send it to them." So here's a photo of Lawrence, Lonjezo, and Nsima for you! Nsima is a staple dish here, thick maize flour paste, which you eat with sauce and veggies.
Guess who's back! Lonjezo is here for another operation! Part of the issue with Osteogenesis Imperfecta or brittle bones is that it continues to come back - having brittle bones means a multitude of tiny (and sometimes large) fractures build up over time, bending the bones, especially the weight bearing leg bones. We can stabilize the bones with metal rush rods, but when the child outgrows them, they need to be replaced. The doctors are going to xray all of Lonjezo's leg bones to see which ones are causing the most trouble and need to be dealt with first, and afterwards they'll plan for another operation. Please be praying for her!
Kaye has a really cool, new walking stick, and not just that, after two years of faithfully wearing his foot braces, he can now finally breathe a sigh of relief! He doesn't need to wear them anymore! The doctor after reviewing him, told him that his feet are now fully corrected. A reason to praise God! Apart from the the good news, Kaye has also started developing some back complications, so Dr. Mbugua requested him come to Kijabe soon for some scans and more consultations on the way forward. As we thank God for his healed feet, let's remember to pray for the spine complication.
Quinter passed by clinic today on her way to school. We missed a photo opportunity with our sweet friend but, we are happy to report that she is doing very well and her legs are looking good and she is ambulating on crutches! Her next appointment is on the 17th of January next year. We pray that she will be doing even better then and God willing will make sure to post a photo to show you how good she is doing!
We haven’t seen or heard from Milton in a long time, so today we called up his mom to follow-up. She was happy to hear from us, and gave us a great report! Milton is a Junior in high school now and doing so well walking! They came in 2015 to have a prothesis repaired and have no complaints now. We told her about our next clinic in Thika in September and she said they will come for review and so we can see him. We cannot wait!
It's always good to see a patient so faithfully coming for follow up. And of late, Christopher and his father have been very good at that. This boy really does love to play, from the minute they arrived to the time they left, he was ready and willing to join in any activity around him that seemed like fun! He colored, chased other kids around and played a lot of other games! He is making some slow but good progress with the exercises his dad is helping with at home and the doctors encouraged him to continue with those exercises. It was a good day for Christopher and we look forward to seeing him again on our next visit to Embu on September 15th.
We see J-Vie hanging out at the hospital on a fairly regular basis, but today was more than a social call, he had a follow up with Dr. Tim. Since today is Dr. Tim’s last day in the Philippines for a few months, he wanted to get one more check squeezed in. Everything is still healing well, and J-Vie will be back in December to have the rods removed from his legs, so he'll have plenty of time to recover before Night to Shine! But, we know we’ll see him hanging in the playroom long before then!
Sirguit is feeling proud of her self today! Our doctors told her she did a very great job taking care of her frame and that she is a good example for the other kids who are learning to do the same thing with their frames. She is doing very well and we will see her again in five weeks!
Tola came with his father for his follow-up, he is in good spirits and his left leg is healing well! He still needs another procedure done on his right leg, so he is scheduled to come back in August for that operation. Please keep him in your prayers!
Ezra showed up today! He went to get his braces re-fitted, but cried through the whole thing. We thought he was in pain, but the physiotherapist just chuckled. “No, he is just fearing, there is no pain.” We hope Ezra gets used to the process of getting braces fitted, because he’s not done growing. For now though, he has new braces that fit and has been sent home! We won’t need to see him until November for review. We are thankful for a good report!
This was the scene today during Quinter’s great report. “Wow, very good,” Dr. Theuri said after looking at her X-ray. The bones have healed well. She’ll have her pins removed today and go home without a cast! She can walk using crutches and will come back in July for another review. We thank God that Quinter and her Mom both left smiling today!
“I don't know what to say, I am just happy that Frank is now healed and, by the way, there is nothing that he doesn't know, he is too smart!” said Emmanuel, Frank's father. Frank talks a lot and he is in good shape, in fact, his father is planning to enroll him into school soon! We are thankful to God for the good things happening to Frank.
Charity showed up today at clinic, jovial as always. She is doing great and her back is looking good with no new complications. Last time the doctor had recommended a walker to help her walk and today her mother told us that she got one for her and she is making some good progress. Charity's health is not the only thing that is improving. “She has been doing very well in school. She has been number one in class constantly,” her mother told us. We thank God for all these good reports! We look forward to seeing her again next year June. We hope and pray that she will continue with the good progress!
First thing in the morning, we saw Christopher trying to find snacks in his dad’s pocket. As soon as he saw the camera though, he paused and posed. He is such a beautiful boy! After review, the doctor noticed that although Christopher is comfortably able to move his neck, his natural tendency is to tilt it. She sent them to see the physiotherapist again, so Christopher’s dad might get more training on home exercises. He is always quick to listen and faithful to help his son. We are so grateful for the progress Christopher has made so far, and plan to see how they’re doing at our next Embu clinic, June 16th.
Activity for the week of Sunday, Jul 24
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