Centennial Baptist Recent Patient Updates
Activity for the week of Sunday, Jun 28
We were surprised but happy to see J-Vie at clinic today! His casts were rubbing on his toes, so Dr. Tim cut them back a bit and added some padding. We were teasing him that he just came back to hang in the playroom! But once his casts were fixed, he spent a while in there hanging with the guys playing games and doing some crafts, so maybe there was some truth there! We told him he’s welcome anytime, he’s fun to have around!
After a couple of whirlwind weeks, J-Vie now gets some time at home to just relax and recover. He was discharged this weekend, and we won’t see him until the end of July. No doubt sitting around for 6 weeks will be a challenge for him, but he assures us that he’s definitely up for it. He, Joel, and Elvie all understand that this road is long, but this trio makes a great team! Please keep praying for this awesome family!
So if everything goes to plan, J-Vie and the parents will go home tomorrow morning. He’s still hurting today, but his pain levels are still dropping. He and Joel spent some time gaming in the playroom today, it was nice for him to get out of bed for a bit. He plans to visit his school in a few weeks, and show off his new legs to his friends! He’ll be back in about 6 weeks to get this set of casts off, and downgrade to a smaller version, then even smaller ones later. Stay tuned to watch J-Vie’s incredible shrinking casts!
Mahlet was running around and playing with the other children that came for a follow-up like her and she is doing very well! Since she is walking well and everything is in a good condition the doctors decided that she is going to have a pin removal on her right hip. We will see her on August 11th for an admission, please keep her in your prayers for a safe return back to us!
Last night and this morning are the first times through this whole journey that J-Vie has been feeling “real” pain. Elvie told us that last night he rated his pain level at about 8 out of 10, which is pretty significant. Then a while ago when we asked again, he said about 6. We’re happy to see it going down, but we still need prayers for it to drop even further! Even with the pain, he’s tough as nails and won’t complain, even though we’ve said it’s OK to grumble a bit. Sometimes it helps! Elvie keeps reminding him that the pain is temporary, but his straight legs will be forever! And that’s exciting!
J-Vie had both Joel and Elvie accompany him to the operating room this morning, he has a ton of support from both his parents, so awesome! The right leg was almost a mirror image of his left leg procedure from a few weeks ago. As promised, we took a few pictures of J-Vie’s left leg while the cast was off…wow…what a difference already! He told us this afternoon that the pain was even less this time, praise God! Thanks for your continued prayers!
J-Vie is back and ready to tackle Surgery #2! He will have his other leg straightened, and then he can focus on healing. He tells us he’s “a little nervous, but much more excited” about tomorrow. Elvie is super excited, and asked if she could get pictures of his straight leg when his cast is temporarily removed during surgery. It’s like waiting to open Christmas presents! Please pray tomorrow for J-Vie’s second surgery!
This morning, Abdoul Karim was walking in the ward and visiting with the other kids. He was following Aramatou as she was making her rounds in the ward. It’s nice to see how kids take care of their friends who have surgery and show them compassion! They’re in this process together!
Media is doing great! She is walking better with her crutches and her leg is healing well. The doctors have decided that she needs a knee brace to help her leg stay straight and they say they will see her again when she gets the brace. Please keep praying for her!
As usual, Tsehay came back with her friends from Alemachen house for her follow-up. She is walking comfortably with her supporting shoe and everything looks good! She also received the exact date of her admission which is July the 22th and we will see her then when she returns for her next operation.
Daniel rounds out our group of boys who all went home today. While it’s a long drive to his town, he’s excited to be going home. This is his “I’m excited I’m going home on Friday!” look. Hey, it’s been a long week, this is about as excited as he was going to get! He's definitely happy though, and still so thankful for his surgery. We’ll see Daniel in July, thanks for all your prayers, we’ll keep you updated on his progress!
As of this morning, it was unsure whether J-Vie would go home today or tomorrow. Well, the good news is, we just found out he gets to go home this afternoon! J-Vie gave us his best “I’m excited to go home” look, and in his typical style, he’s happy, yet cool and casual. The whole family is looking forward to sleeping in their own beds tonight after a long week. J-Vie will be back in 2 weeks for a follow up, and for preparations for the other leg. We’re happy they’ll be returning soon, they’ve been a lot of fun to have around!
J-Vie is still holding steady when it comes to pain, we are truly amazed at how well he’s doing. His next surgery is scheduled for 2 weeks from now, so he will go home to rest for a bit, and then he’ll be back. He spent this afternoon sketching with another local artist, our Executive Director’s son Drew! The two hung out, and Drew did some doodling on J-Vie’s cast, then other staff members added their artsy touches. So, he’ll have a reminder of us while he’s at home! Thanks for praying for J-Vie, he will be going home soon.
Daniel spent a chunk of time in the playroom playing video games today! He also spent some time in physical therapy yesterday, learning how to use his crutches. He picked it up fast, so today he was out and about. This afternoon he was hurting some, but it was good to see him have such a good morning! He told us yesterday, and then again today, how thankful he was for his surgery. He genuinely understands how this experience will be life-changing for him. He really is a sweet kid! He will go home soon, thanks for all your prayers!
We wish we could quote every awesome and inspiring thing that Elvie says, but no one can write that fast! Every time we visit, she goes on and on about how thankful she and Joel are, how J-Vie’s surgery is a dream come true, how much she loves the Lord, and how much she loves her son. While it’s our “job” to encourage and comfort these families, she’s the one doing a lot of the encouraging! This morning, J-Vie was reading his CUREkids profile on our Children’s Mentor’s iPad. He approved of our messages! He is doing remarkably well, considering how much work was done on his leg less than 24 hours ago. He had trouble sleeping last night, because other patients in the ward were in pain, but hopefully he can rest today. Thank you for your prayers, they are definitely being heard and answered!
Daniel’s awake today but the pain is setting in a bit. He’s trying really hard to hide it, but we’ve told him it’s OK to hurt, and OK to express his emotions. It might actually help him feel better! He listened to a handful of Get Well notes earlier, which were encouraging to him, and got a big dose of prayer from Madel, our Spiritual director, and Cyra, our Children’s Mentor. We’re thankful for everyone who is joining us in prayer for Daniel!
J-Vie’s surgery was long and complicated, as expected, but it went very well. Only his left leg was done today, we will do his right leg in about 3 weeks. Dr. Tim sorted through an arsenal of hardware beforehand to pick out the perfect pieces to get J-Vie’s leg straight. His femur was cut in a couple of places, then plates and screws will hold it in place. Then, the lower leg was cut in several places, and the pieces of bone were strung onto a long metal rod. The best way we can describe it is “beads on a string.” Sounds weird, but it was truly remarkable to witness. When J-Vie woke up, he was in really good spirits, talking and joking. We know a lot of that is still his medicine, and when it wears off he’ll be hurting. Still, Elvie told us this afternoon, "I'm so happy, I could fly!"
Daniel’s surgery went flawless this morning, he got in and out of the operating room very quickly! The doctors took a small section of bone out of his ankle, which allows it to rest the right way, instead of being twisted. He has been sleeping and resting quietly this afternoon. He's definitely in pain, but so far he’s handling it really well. Please keep praying with us for Daniel!
We have learned quickly that while Elvie is small, we will have to be on our toes to keep up with her! Despite her physical limitations, she goes a mile a minute, and seems to have endless energy. She told us that she’s so excited for J-Vie’s surgery tomorrow, she won’t be able to sleep tonight. She and Joel were with J-Vie this afternoon, they are a super fun family! J-Vie is very blessed to have such upbeat, positive parents by his side. Tomorrow’s the big day, we will need lots of prayers, please join us!
Activity for the week of Sunday, Jun 28
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Why I Support CURE
Chris is excited to join CURE for the same reason most of us are part of it: Seeing the Kingdom of God at work in kids lives. "Kids right now who can't walk, they're being carried, who can't go outside because their faces look different… they get to be kids again. Because of CURE… because of you and me and everyone else involved, kids will be kids again, and be able to walk and run.Chris Tomlin