Other kids like Mussa Umali who need your support
- Seen in Clinic 11/19/2010
- At CURE On 11/19/2010
- Operated On 02/19/2012
- Scheduled For 02/19/2012
- Closed On 03/09/2013
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8 years old
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About Mussa
Before arriving to Malawi, I believed I had a good grasp of what perseverance and hard work was. Achieving something, anything, despite major or minor difficulties. Now I know, I never knew a thing. Mussa Umali has been diagnosed with Osteogenesis Imperfecta. A condition most die from at or soon after birth, but if one manages to survive longer, they are plagued with brittle bones that fracture at nothing, severe bone deformity, and severe chronic pain. Mussa survived, and is the strongest boy I know.
Mussa doesn’t only survive he has the strength and the courage to take on the day with a new hope. He said in his interview, he believes he will be healed, but most importantly, if he isn’t helped, he says, “I will be fine.” He will continue to live and be happy. He has almost become unaware of how difficult it is to have any disability, let alone, the one Mussa suffers from. He survives because he loves living, despite his difficulties.
Fortunately Mussa does not carry his burden alone. After being publically humiliated, then abandoned by his father because of his disability, Mussa moved back to his mother’s village with his mother and siblings. After hearing the news, Mussa’s uncle, left his home and moved in with Mussa and his family. During our interview there was a break in the uncle’s character and he became visibly emotional when talking about his relationship with Mussa. Though emotions, here, are rarely expressed outwardly, one can still feel the intensity, the distress the love and the pain, where it’s written on their worn faces. He said, “this is what God has given us, and it’s our responsibility to do whatever we can.” This included years of carrying Mussa on his back, working to feed the family, and taking care of any other business that involved Mussa. The love between the two of them seems even stronger than a bond between father and son and it’s beautiful. Though Mussa’s mother has since remarried and is very supportive of the family, Mussa’s uncle continues to live with them and not only supports Mussa as an uncle and a confidant, but also a shining example of the strength Mussa already displays at such a young age.
Status
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Day 280Mussa and his entire village http://bit.ly/qBhBgF
Friday August 26, 2011
Day 243We met up with Mussa in his village. He's still going through physical therapy, but pictures speak for themselves http://bit.ly/nNtlRI
Wednesday July 20, 2011- Day 137Mussa missed his review date. Look out for a home visit update! Keep him in your prayers!
Tuesday April 5, 2011 - Day 122Mussa's treatment date has been changed to 03/28/2011
Monday March 21, 2011 - Day 111Looks like Mussa won't be needing another surgery but will still be reviewed on the 28th. Pray for quick healing!!
Thursday March 10, 2011 - Day 88Mussa went home last night after he was just reviewed. He and his uncle will be back again on the 28th of March to decide when the final surgery date will be!
Tuesday February 15, 2011
Day 73It was a family reunion at CURE today. Mussa is also back with us. He looks great! Update on next surgery coming soon. http://bit.ly/dTVuSc
Monday January 31, 2011
Day 24Mussa Goes Home 4 Now http://bit.ly/hBLTWh
Monday December 13, 2010
Day 17Mussa in casts, out of surgery. He'll be in hospital until he's ready for his next surgery http://bit.ly/hMpcAi
Monday December 6, 2010
Day 17Despite a painful surgery, Mussa managed to give me a smile http://bit.ly/eOSvQp
Monday December 6, 2010- Day 14A new video was posted for Mussa Umali http://www.youtube.com/watch?v=sSSlbFtrgPA
Friday December 3, 2010
Day 14A new photo was posted for Mussa Umali http://bit.ly/gXDAlf
Friday December 3, 2010
Day 14A new photo was posted for Mussa Umali http://bit.ly/fTMbMf
Friday December 3, 2010- Day 13A new video was posted for Mussa Umali http://www.youtube.com/watch?v=yzm5Ki-Zs4g
Thursday December 2, 2010 - Day 13Congratulations! Mussa's funding is complete!
Thursday December 2, 2010 - Day 10Because of Mussa's condition, his next scheduled treatment on Dec 3 will not be last surgery he'll need. Please keep tracking with his story and tell your friends!
Monday November 29, 2010 - Day 10Mussa's treatment date has been changed to 12/03/2010
Monday November 29, 2010
Day 3A new photo was posted for Mussa Umali http://bit.ly/d3OJuM
Monday November 22, 2010
Day 3A new photo was posted for Mussa Umali http://bit.ly/cwDugZ
Monday November 22, 2010
Day 3A new photo was posted for Mussa Umali http://bit.ly/aErs4z
Monday November 22, 2010
Day 3A new photo was posted for Mussa Umali http://bit.ly/bZqHMm
Monday November 22, 2010
Day 1A new photo was posted for Mussa Umali http://bit.ly/cwzXUn
Friday November 19, 2010














