Picture of the Week: Hydrocephalus training in Uganda
Dr. Patrick, from Malawi, and Dr. Diallo, from Mali, with Jim Cohick, are in Uganda for training on hydrocephalus treatment.
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Posts Tagged hydrocephalus
Beginnings
As many of you know, my wife recently completed her doctorate in physical therapy and joined our team at the CURE Children’s Hospital of Uganda. This week, we had the privilege to watch her and her colleague Lucy, also a physical therapist on staff, conduct training sessions with the mothers of patients who are presently on our ward. Read the rest of this entry »
CURE Hydrocephalus Congressional Testimony Video
For those who didn’t get a chance to see CURE’s testimony before the US Congressional Subcommittee on Global Health, here’s the video content from C-SPAN.
You can also see the video here: http://www.c-span.org/Events/Rep-Chris-Smith-R-NJ-Africa-Subcommittee-Chairman/10737423364-4/
CURE Testifies on Hydrocephalus Treatment
On Tuesday, August 2, three representatives of CURE Hydrocephalus testified before the House Foreign Affairs Subcommittee on Africa, Global Health, and Human Rights, chaired by Rep. Chris Smith of New Jersey. The purpose of the hearing was to learn more about the impact of hydrocephalus, a potentially fatal condition which goes largely untreated in the developing world, and what can be done about it.
Dr. Benjamin Warf, former Medical Director of CURE Uganda, presented the highly effective treatment for hydrocephalus that he pioneered while serving in Uganda. Dr. Steven Schiff, who conducted extensive research at CURE Uganda, testified regarding the preliminary results of that research, which provide hope that many forms of hydrocephalus will one day be preventable. Jim Cohick, Senior Vice President of Specialty Programs at CURE International, spoke about CURE’s efforts to spread the treatment of hydrocephalus throughout the developing world.
“This hearing is welcome recognition by the US Congress membership that hydrocephalus is an issue of global concern,” says Jim. “CURE International’s initiative – CURE Hydrocephalus – uniquely positions us to be able to scale up our efforts in treatment, training, prevention and research, and compassionate care with current and future partners across the developing world landscape.”
PRESS RELEASE: CURE Provides Expert Testimony on Hydrocephalus Treatment to Congressional Subcommittee (PDF)
C-SPAN VIDEO: Reps. Hear About Innovative Treatment for Hydrocephalus
CONGRESSMAN SMITH: New Treatment for Hydrocephalus Topic of Health Subcommittee Hearing
CURE to provide expert testimony before US Congress
Next Tuesday, August 2, 2011, there will be a hearing titled “Hydrocephalus Treatment in Uganda: Leading the Way to Help Children,” held by the Subcommittee on Africa, Global Health, and Human Rights, part of the U.S. House of Representatives Committee on Foreign Affairs. Three expert witnesses have been called to testify at this hearing. Benjamin Warf, M.D., of Children’s Hospital Boston and the founding medical director of CURE Uganda, and Steven Schiff, M.D., of Pennsylvania State University, have both been called. These two experts have done extensive research on the causes and treatment of hydrocephalus. CURE Uganda has been a focal point for much of this research.
The third witness is Jim Cohick, the Senior Vice President of Specialty Programs. Jim has been working tirelessly to expand the CURE Hydrocephalus program and bring healing to more children afflicted by this deadly condition.
This opportunity to testify before Congress represents a critical next step in the growth of global health programs to address infant hydrocephalus. Congress regularly provides aid for life-saving medical treatment in third-world countries; through this hearing, we hope to see Congress inspired to join in the cause of fighting hydrocephalus in their future developing world healthcare initiatives.
Please keep Benjamin, Steven, and Jim in prayer as they prepare for this hearing. Pray as well that the hearing will ultimately result in more children cured of hydrocephalus. Thank you!
Read more about the hearing here: http://foreignaffairs.house.gov/hearing_notice.asp?id=1344
1 year, 1,000 surgeries
It has been an extraordinary year thus far. As our fiscal year ends June 30, we take a look back at the past twelve months and gauge our performance and accomplishments. All over the world, the rising cost of living has taken a toll on many businesses and organizations, as customers’ wallets shrink more and more. This is especially true in Uganda. Even the biggest and most established private hospitals in Kampala, the capitol city, have seen a decrease in demand for their services. Most Ugandans simply don’t have the money, even for life-saving surgery for their children. Read the rest of this entry »
CURE Zambia Hosts IFSBH Parent Conference 2011
Last Friday, CURE Zambia was teeming with men, women, and children for the annual parent’s conference of the Lusaka chapter of the International Federation for Spina Bifida and Hydrocephalus. Organizers had estimated that approximately 180 parents and children would come to the hospital for the conference, but a whopping 242 people showed up, proving to everyone that the issues surrounding the care of children suffering from hydrocephalus and spina bifida are at the forefront of pediatric care in Zambia. Read the rest of this entry »
Patient Story: Oroma Purity
Oroma Purity is a daughter of Aciro Can Winifred. Their family is from Lalojo Village, Kitigum district, located in Northern Uganda. Purity is the youngest of four girls.
When Purity was born on October 16, 2009, in the area hospital, she appeared to be healthy. It wasn’t until one week after birth that she developed abnormal and severe symptoms such as fever, irritability, vomiting, diarrhea and a rapid head size increase.
Winifred and her husband frantically sought advice from relatives on possible solutions, but it was to no avail. None of the the community members had a definite explanation or, more importantly, a solution, for Purity’s condition. Read the rest of this entry »
Patient Story: Kituyi Faith
Faith in God is like a voluntary muscle. You have to use it to make it stronger. This story is, quite fittingly, about a little girl named Faith.
Kituyi Faith was born on January 15, 2009, to Veronica and Dismas, who are from the Bungoma district in Kenya. Both of them are civil servants employed by the government of Kenya. They have two children; Faith is the youngest.
When Veronica was seven months pregnant, she began to bleed heavily and was rushed to the hospital. The doctors discovered a ruptured placenta and had to perform an emergency surgery in order to save both mother and child. Faith entered the world as a preemie. Read the rest of this entry »
Precious & Angela
It was a few months back that I noticed one of the cutest little girls I had ever seen. She was sitting with her mother, who was selling soft drinks by the hospital kitchen. She was always smiling, and, without saying a word, I could tell that she had a vibrant personality. Little did I know that over the next few months I would get to know this little girl named Angela and her mother, Precious, quite well and eventually they would become friends of mine. I’m not sure why it took so long for me to tell their inspiring story to all of you, but better late than never, I guess! Read the rest of this entry »
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