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Archive for January, 2011

Patricia Lives to Tell Her Story

Patricia from CURE Zambia

Patricia during treatment at CURE Zambia

CURE Zambia's medical director and orthopedic surgeon, Dr. Lastroni poses with Patricia

Last week I was introduced to a shy and quiet 12 year old named Patricia.  Patricia was an orthopedic patient of Dr. Lastroni, our consultant orthopedic surgeon and medical director.  Other than a very slight limp, she appeared to look like the average child one sees when travelling through the streets of Lusaka.  Who knew that this slightly built young girl had gone through so much over the past six months…

On July 1st of last year, Patricia was walking home from school with her three best friends when a sudden whirlwind came barreling toward her.  To avoid the wind and the debris, Patricia and her friends fell to their knees and crouched down – waiting for the wind to pass.  After a few seconds, the whirlwind disappeared and the four girls continued walking home.  Everything seemed normal for Patricia until two days later, when her leg began to swell up.   In severe pain and unable walk on her left leg, her grandmother Susan rushed her to CURE Zambia to see if there was anything the doctors could do.

After Patricia was admitted to CURE Zambia and during the four days she stayed at the hospital, her left leg developed boils that beginning to ooze pus.  “From what we could tell, Patricia had developed septic arthritis and the infection was quickly spreading throughout the soft tissue on her leg,” Dr. Lastroni explained.  Unfortunately for poor Patricia, the operating theatre at CURE Zambia was closed for renovation at that time.  Nursing staff had to transport Patricia to the University Teaching Hospital of Lusaka, as it was the only hospital that could accommodate her at that time.

Once Patricia and her grandmother arrived at UTH, she was sent to theatre where her leg was treated and cleaned.  The medical staff at UTH also began to cut the infected skin in an effort to stop the spread of the infection.  “Patricia was very scared,” said Susan.  “The doctors were not telling her why they were cutting her skin.”  Shortly after the operation at UTH, Patricia was sent home to convalesce for two weeks.  Her leg and her health only seemed to be getting worse.

Patricia headed back to CURE Zambia in August 2010 to see what more could be done to save her left leg.  Dr. Lastroni and the orthopedic team at CURE Zambia worked tirelessly to save Patricia’s leg through continuously flushing out the infection and creating a series of skin grafts to cover large wounds covering left knee and thigh.  During this, many of Patricia’s friends and family were convinced that she would lose her leg, or worse…

Today, everyone who meets little Patricia can safely say that she is a walking miracle.  In fact when Patricia travels around her neighbourhood in Lusaka many are shocked to see her.  “Everyone thought my little girl would die.  Sometimes people even think she’s a ghost,” laughed Susan.

From this harrowing experience, Patricia hopes to be a nurse one day.  “I must say that I LOVE this hospital, “ exclaimed Susan, “the nurses and doctors are so good.  I tell everyone I know about CURE.”  Patricia added quietly, “They’ve done a lot for me.  I grateful to be alive.”

We at CURE Zambia are also grateful that little Patricia is alive!

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Mead Minutes: Can I Volunteer at CURE Kenya?

Good morning from Kenya!! The dust is swirling all around station today as the winds gush and blow. Even in the relative shelter of the house, I feel a slight grit across my cheeks. Few birds and animals appear to be around the area. The valley is a vague, hazy outline instead of its usual early morning sharp features. Time for a coffee inside today.

Many people ask about visiting here in Kijabe, Kenya. I hear a lot of the same questions:

  • Do I have to be a doctor?
  • I don’t preach. Does that matter?
  • I could never do what is being done in the operating rooms.
  • Do I have to eat goat?
  • I work with computers, would that be of help?
  • I just want to see the big animals, can you take me?
  • Will I get AIDS and die?
  • What food is usually eaten in Kijabe?

I thought I would share my thoughts of short term volunteers — their benefits and their costs.

For the CURE Kijabe Hospital, I divide volunteers into medical and non-medical. We will start with the medical volunteers since I know this best. The first and foremost requirement for a medical volunteer is their attitude. We at CURE seek those coming to serve. They must respect the Kenyan culture and people. They must not appear or send out the unspoken message they are the ‘grand expert’ coming to save the poor Kenyan. First, little lasting change will occur within a short term trip. You will not save the world or change Kenya in a couple of weeks. Sorry. Second, often the expert deals with problems we may not see and has ultrahigh technology that is not available in the developing world. Many of these surgeons are overwhelmed by the deformities we treat and equipment we use. A level 1 trauma orthopedist expecting the same technology here in Kijabe as at home will be disappointed.

The second requirement is they have a skill and knowledge helpful to our ministry at CURE. We are primarily an orthopedic rehab hospital. Orthopedics in Kenya encompasses many deformities treated by plastic surgeons in the US. Cleft lips and palates are done by special ENT teams coming from the US. Although an invasive cardiologist would have many options where to serve in the world, CURE Kijabe is not one.

Third, we ask that each medical volunteer prepare and give a few lectures during their time here. We will assist in selecting topics. CURE Kijabe is not about just doing surgery but, more importantly, teaching residents and staff about caring for the children. Drs. Kim Augustein and Virginia Nelson, for example, are rehabilitation specialists (PMR physicians) here currently. As part of their time, they will care for patients and assist us in that fashion. Likewise, they will teach the residents about neuromuscular disorders. They work closely with our physical therapist to improve his knowledge. We are thankful Kim and Ginny will lead a two-day teaching conference for our CURE staff and other therapists, nurses, and orthopedic technologists in the region. These doctors have been making trips to CURE Kijabe since I first came in 1998. CURE Kijabe has grown greatly in knowledge due to their efforts.

The first trip to CURE Kijabe for orthopedists is often one where they learn about what it means to serve in Kenya and what types of cases we treat. We will not leave a new surgeon alone to care for a patient. He/She will not do surgery the CURE Team is not able to safely care for post-operatively. We do not experiment on our patients but care for them as if they are our own flesh and blood. Some surgeons come in and thrive on the challenges inside and outside of the operating room. Other surgeons never feel comfortable. That is not a bad outcome for the trip. You learned you have to use your gifts in other fashions. Sometimes God will use a short term experience to grow your heart in a special manner or direction. A large percentage of long term missionaries started out as short term volunteers. I am one.

Short term volunteers can, in reality, be a lot of work for our staff. The visitor must remember we do live and work here. We can not take off and go shopping as you may desire. We can assist with side trips to the Mara to see animals, but you should realize these trips take time to organize. Asking for assistance prior to the trip makes the work easy. We can make many suggestions for you to consider. Local information is generally better, gets cheaper rates, and is more reliable than internet scheduling. Trips to Nairobi can e fun, but gasoline is between $5-6 per gallon. Oil changes are $150. Missionaries cannot afford to spend funds in this fashion on a routine basis. Assisting with costs would be a nice gesture. Short term trip costs are more than the cost of a plane ticket. The cost of lodging, food, sodas, hot water, and the cleaning people’s time all add up. If the hospital was to pay for these costs, there would be less money to care for the children. The bottom line is this: we are here to transform the lives of the physically disabled; the kids come first.

Short term volunteers can be a huge benefit for our staff as well. The visitors bring a fresh face and a smile to our hospital. Short-termers can bolster the spirits of the staff. Encouraging words are welcome to all!! Kids on the ward enjoy visitors from overseas. Your funny accents, clothes, and enthusiasm often baffle them. Simple gifts such as balloons, Matchbox cars, and crayons create mega smiles.

Short term volunteers can act as ‘mules,’ raising funds to purchase and carry over medical supplies to offset the costs of those we purchase. We especially covet children’s chewable multivitamins, surgical suture, cloth reusable OR gowns, and orthopedic surgical appliances (plates, screws, wire, pins, etc.). Maybe you are called to short term missions not by going but rather by fundraising and procuring needed supplies. No jet lag in this calling!! Africa, South America, the Middle East, and the Far East are not for everyone. But we all can help others who wish to serve in these places.

Some volunteers plan to raise funds to sponsor a bed for a year as their group goal. Others bring orthopedic equipment we are in need of replacing. Visitors buy carvings, paintings, and other knick knacks, which assist the local artisans earn a living.  So in summary, medical volunteers come to teach first, then to serve by doing, and finally to learn about developing world medicine and about themselves.

Nonmedical volunteers carry a wide spectrum of skills to CURE Kijabe. We seek specialty assistance in computers, lab, business, and others. Someone coming for six months or longer to create a computerized record and teach CURE staff to use it would be a dream! Short-termers can assist with evaluating our practices and making suggestions for improvement. People with maintenance and building skills are welcome to come and assist in the many needed repairs and breakdowns in the hospital and the staff houses. Once a Mr. Fix-it man came with a couple of action packers full of screws, knobs, parts, and whatever, volunteering to repair items in houses all over station. What a gift! We have a group called the A-Team from Pennsylvania composed of mentally challenged adults and their traveling friends who come to serve. They are some of the best volunteers we have had. They have planted trees. They have cleaned the hospital compound. They have colored with the kids for hours in the playroom. The A-Team watched the baboons for hours on end. They shared their stories. Parents realized disabilities affect people all over the world; they are not alone. The A-Team did whatever they could to help. Again attitude is key!

Jana and I also have a special group of friends who come as ‘volunteers.’ Bev and Mel have come and stayed with us many times over the years. Bev and Mel come primarily as our special support group. Mel is an engineer and also now a Stryker cast saw repair specialist and a teacher who always has projects to do. Bev serves where needed and leads Bible studies on station as well. Sometimes they baby-sit so parents with young children can get away. Sometimes they work at school. Both are very special to Jana and me; quiet talks, house projects, cricket killing contests, and laughter mark their visits. I could not imagine our time without their visits.

Jeanne is a quilter among many other gifts. She and Jana design, create, and teach quilting during her visits. She, too, is a special friend and welcome guest for us. Jeanne has made friends among the Maasai, who ask for her continually. Jeanne’s husband, Jerry, likes to think he is a family practice physician, but I showed him he is much more than that alone. No rest for that man here! Living in a different culture far from your old home can be stressful at times. We will never be Kenyan, always visitors no matter how long we live here. Being spoiled with visits of special friends is a grand gift!

The Spiritual team has volunteers come and share their stories and teach our patients and staff. Despite language barriers at times, a caring posture and true concern are a universal language appreciated by all.

Short term volunteers will never take the place of full time dedicated staff at any missionary effort. Too much depends on long term relationships and experience. Short term volunteers coming with a servant’s heart open to whatever is needed will always be a welcome addition to the work. Together, long term and short term, we can accomplish much, much more and be better than either working alone. We can serve the people together as we serve in His grip.

P.S. No, you do not HAVE to eat goat, but you MAY enjoy this food if you wish!!

…But He is good

Editors note: On January 7, 2011, two French citizens were kidnapped by terrorists and later killed in Niamay, Niger. You can read more here. The following is a reflection from Karina Roark, the wife of CURE Niger medical director, Gary, in the wake of that event. Please keep the Roarks and all CURE’s staff in Niger in your prayers as they serve the children of the poorest country on earth.

We were sitting in our living room sipping ice water and saying goodbye. In less than 24 hours, my new friend would be leaving Niger. She was being evacuated.

One week earlier two young French men had been kidnapped three blocks from our home, by Al Qaeda in the Maghreb (AQIM). Within 24 hours of their capture they were dead, along with the kidnappers and several Nigerien military. A French-Nigerien rescue attempt went wrong. As we talked, she asked me if I’d thought about what I’d do if someone pointed a gun at me and said, “Get in the car!”

Two weeks later, I’m still thinking about her question. Not so much as to what I’d do (although that is a very good question), but rather could it really happen to me, or Daniel, or Gary. The American powers to be in Niger seem to think it is a possibility. The US government has mandated a 9pm to 6am curfew for all embassy personnel, and travel is restricted. The Peace Corp has evacuated all 98 of their volunteers for the first time since 1962. Boston University, which has offered a study abroad program in Niger for 20 years, cancelled their spring and fall semesters. My friend has left. AQIM has changed the face of Niger, perhaps for a very long time.

My next thought was even more disquieting, if it could happen, would God let it? We came to Niger to share His love with the most vulnerable of His creation, the little ones either born handicapped, or having become so. Wouldn’t God keep us safe?

He wasn’t safe for Stephen when he was stoned. He wasn’t safe when Nero burned the Christians to entertain the mob. He wasn’t safe for His children in Egypt when they walked out of Church on New Years Eve, but never made it home. He hasn’t been safe for our brothers and sisters in Christ who have given their lives on foreign soil in service to our country. He wasn’t safe for the two French men who were kidnapped and killed. He wasn’t safe when…when… when…He wasn’t safe when His Son was nailed to the cross.

“Course He isn’t safe. But He is good.” Said Mr. Beaver (aka C.S. Lewis)

The first time I read this, I trembled. Sometimes I still do. Truth be told, it doesn’t always feel like God is good when He isn’t “safe”. But just because I don’t feel it, doesn’t mean it isn’t true. If the Christian God isn’t good, why would so many risk their “safety” to believe in Him. Why would someone choose to believe God in China, or Iran, or Afghanistan knowing that to do so could cost him his job, his family, his life? Why would someone who has been beaten and imprisoned for his faith, or has lost a loved one early in life, or suffered unspeakable tragedy, or…or… or… still worship and praise God when He isn’t “safe”?

We still worship Him because we know that our God is good, and good is ultimately better than safe. Good says, “The Lord himself goes before you and will be with you; He will never leave you nor forsake you. Do not be afraid; do not be discouraged.” (Deut. 31.8) Good says, “I am convinced that neither death nor life, neither angels or demons, neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.” (Rom. 8:38,39) Good says, “Come to me, all you who are weary and burdened. And I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls.” (Matt.11:28,29) Good says, “So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.” (Isaiah 41:10) Good declares that God’s love for us is so incredible, He died to prove it.

I fear many things on this side of heaven – illness, accidents, death…and now kidnapping. When I face these on my own, fear consumes me. But when I consider that I know a good God, who promises to see me through my darkest hours, then I am able to experience moments of peace that pass all understanding. And in the midst of the storm He invites me to walk on water.

Yes, He is good.

While we are walking on more sand than water these days, we are praising God for His peace in the midst of our storms. And we want to thank you for walking with us in your prayers, encouragement, care packages, and financial support of our ministry. You are also good!

Calling all Bloggers

Do you…

Have a blog?

Run a website?

Offer free or low-cost advertising to non-profits?

Post YouTube videos to Facebook?

If you answered yes, to any of those, then we have a practical way you can help CURE online and heal more kids with us.

A few weeks ago, we launched CUREkids. The initial response has been encouraging, but we want to let even more people know about these children and their stories.

We need your help do that.

We all know that relationships matter. Relationships are the foundation of how we serve at CURE, and so we’re asking you to use your influence to share CUREkids with others.

To help, we’ve created an simple piece of embed code (just a YouTube video, but for CUREkids) in the Share section of CUREkids (see below).

Share CUREkids Screenshot

Just go to cure.org/curekids and click Share to find the “Embed” option. From there, you’ll find simple code that you can copy + paste into your website or blog.

Blog about CUREkids, and use the embed code to show people what you’re talking about. It will make all the difference in the world – for the children we’re serving AND for the people who have an opportunity to participate.

Give. Follow. Share. See Results.

Pass it on.

A blog with an embedded CUREkidBlog embedding CUREkids

UN Article on Clubfoot and Ponseti

Recently, the website IRIN, an office for the coordination of Humanitarian Affairs in the UN posted an article on the Ponseti casting process, labeling it the “cure for clubfoot”. The article references CBM, one of CURE’s strategic partners in our CURE Clubfoot Worldwide program.

As you may or may not know, CURE is the #1 provider in the world of the Ponseti casting process for treatment of clubfoot. Last year, over 4,000 children were cured completely by CURE from clubfoot using this process. This year, we hope to cure 10,000 more children born with the condition.

Simply put, for only $250 of people and plaster a child that would otherwise be crippled for life will walk for the rest of their life through the work of CURE Clubfoot.

You can read the article at http://www.irinnews.org

Below, you can see the before and after photos of Tiyamike Mandani, an infant from Malawi, treated with the Ponseti casting process and funded through CUREkids.

Tiyamike Mandani
Tiyamike Mandani

“Her SMILE is probably the BEST reward.”

The following is a followup from the story posted a few weeks ago regarding Djelika from Niger. You can find the previous story here:

http://cure.org/blog/2011/01/cure-niger-helping-young-girl-to-dance-once-again/
http://cure.org/blog/2010/11/there-is-no-place-else-wed-rather-be/

Dr. Negrini’s comment “her smile is probably the BEST reward” about a beautiful little patient, Djelika, warms my heart.

Djelika was brought to CURE Children’s Hospital of Niger a few months back by a missionary nurse. Djelika had broken her leg and what is all to common practice, she was treated by local or traditional medicine. So often this not only does not help but often adds to the original problem. Djelika was unable to walk. The break was healed up but now she had a sore/ulcer and nerve damage. Dr. Negrini treated the wound, changing the dressings often, and performed a successful skin graft. 1st photo is before the graft and the 2nd photo is after. 

After a couple a of months the nurse brought Djelika back. She was not walking properly which continued to bring her shame as other children made fun of her. She came back to CURE for some physical therapy and was given some great exercises to help her walk properly.

Djelika’s last visit….her gait was greatly improved and her smile was beautiful! The prayer… she will now be able to experience life in a way she would not have been able to without intervention.

Djelika

CUREkids = Social Sponsorship

A few weeks ago, I got a rare chance to catch up with an old friend and colleague who works for a well-known cable company in Philadelphia. We talked about what had happened at CURE in 2010, and eventually he mentioned Haiti. CURE had an important presence in the aftermath of the earthquake in January, and it turns out that (unknown to me) my friend had given a gift to CURE for our Haiti relief work. Eventually, he offered an all-too-familiar question:

“You guys (CURE) do great work, but how are you demonstrating results? What’s really happening to that money?

It’s a fair question, and one that every non-profit worth its salt and nearly every donor wants to know – whether you can give $10 or $10,000. In this age of instant information, supporters of non-profits are more informed and are coming to expect more transparency, choice, and accountability from their charities.

Personally, I welcome these new challenges because I think it’s one place where CURE really shines. We’re not just trying to do good things. We are actually changing and saving lives, and now we can show you – right down to the specific child you can help.

We do what we say, and I can show you

On average, it costs CURE $1000 to take a child with a condition like this.

John Simbaye

And give them a chance to lead a productive and happy life.

At CURE, we’ve been hard at work for the last year trying to apply these principles to what we do and how we ask people to actually BE a part of CURE. What we came up with is a way of healing kids together that we’re calling CUREkids.

The ideas for CUREkids were logical and straightforward.

CURE does amazing work to heal children with curable disabilities, and its costs (on average) $1000 to provide a life-changing surgery for a child. That’s great but…

Many people don’t have $1000 to give, and even if they do, they have that question in their minds, “What did you do with that money?”

So what if we let someone choose to help a specific child and then see the results of that child’s treatment directly from our hospital over the Internet?

And what if we let 20 people with $50 each or 100 people with $10 each or even two people with $500 each to come together on CURE.org and create a community that healed a specific child?

And what if you could track the results of that child’s healing online, on Facebook, over email?

What if something like that existed?

Wouldn’t that be pretty great?!

Introducing CUREkids

So after much prayer and preparation, we’re pleased to offer CUREkids.

CUREkids tells the unique story of each child in our hospitals, shows the before pictures of the condition, builds a community of supporters for their treatment, encourages you to share their story, and allows you to track their progress online.

You can help someone just like the child below, or you can go to cure.org/curekids to learn more. Please check it out, tell your friends, and if you have specific feedback or questions, I invite you to email me directly at joel@cure.org

CURE Breaks Ground on New Philippines Hospital

CURE will one day have a new hospital in the Philippines on the island of Mindanao.

A groundbreaking ceremony was celebrated earlier this week on a pediatric orthopedic hospital that will provide advanced surgical care and loving spiritual care to the children of the Philippines.

Construction on the new hospital, which will be CURE’s 12th worldwide, is set to begin in June.

The ceremony had around 50 people in attendance, including orthopedic surgeons and local dignitaries.

Please make sure to check out the blog for more information in the coming months.

CURE Uganda Celebrates 10 Years

In follow up to Derek Johnson’s post, enjoy this video about the 10 years of CURE Uganda.

Ten Years AT CURE Uganda from CURE Video on Vimeo.

An (Un)Ordinary Day

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CURE Uganda welcomed Arinda Darius, a baby boy from Mbarara in western Uganda, as the first patient of its new decade.

Today started like every other day: Our outpatient department full with babies and their parents; a full ward; seven cases on the operating schedule; and many of the same day-to-day activities. However, today, January 19, marks the date the CURE Children’s Hospital of Uganda opened its doors 10 years ago.

Since then, more than 8,000 life-saving surgeries have been performed, global advancements and breakthroughs made in the treatment of hydrocephalus, numerous publications written about our work and accomplishments, dozens of medical professionals trained to the highest standards, and a change in the cultural attitudes realized toward these children.

Some things have changed over the years, both in terms of what we understand about how to treat these children and in how we minister to them.

Yet, our first patient whom we admitted this morning, on the date of our 10-year mark, is our average patient: a 5-month-old baby with hydrocephalus, Arinda Darius, a baby boy from Mbarara in western Uganda.

Some things have changed; some things remain the same. We still have a lot of work to do.