Last week CURE Zambia hosted the annual Hydrocephalus and Spina Bifida Seminar. The International Federation for Hydrocephalus and Spina Bifida (IFHSB) sponsors the annual seminar.
The federation itself was formed 31 years ago as a support group and information centre of sorts for the parents and sufferers of hydrocephalus, spina bifida and cerebral palsy. This international nongovernmental organization is supported by the European Commission, UNICEF and WHO and has a membership of 40 national and regional umbrella hydrocephalus and spina bifida organizations.
Before anyone in Zambia knew the IFHSB existed, however, Zambian parents of patients suffering from these ailments formed their own group at the University Teaching Hospital in Lusaka in 1998. The IFHSB got wind of this group and decided to support and sponsor it by providing medical supplies and funding.